Communication and decision-making regarding children with critical cardiac disease: A systematic review of family preferences

Kathryn Neubauer, Erin P. Williams, Pamela Kimzey Donohue, Renee Boss

Research output: Contribution to journalArticlepeer-review

Abstract

Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician-parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families.

Original languageEnglish (US)
JournalCardiology in the Young
DOIs
StateAccepted/In press - Jan 1 2018

Keywords

  • children
  • communication
  • decision-making
  • Family
  • heart disease

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Cardiology and Cardiovascular Medicine

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