Cochlear implant quality of life (CIQOL): Development of a profile instrument (CIQOL-35 profile) and a global measure (CIQOL-10 Global)

Cochlear Implant Quality of Life Development Consortium

Research output: Contribution to journalArticle

Abstract

Purpose: Valid, reliable, and efficient patient-reported outcome measures are needed to quantify quality of life (QOL) outcomes after cochlear implantation to supplement information obtained from performance-based outcomes. We previously developed the Cochlear Implant Quality of Life (CIQOL) item bank to serve as the source of items for subsequent instruments. This study reports the development and psychometric properties for 2 of these new instruments, the CIQOL-35 Profile and the CIQOL-10 Global. Method: Cochlear implant (CI) users referred from the CIQOL Development Consortium (n = 371), consisting of 20 CI centers across the United States, provided responses to the 81-item CIQOL item bank, which are grouped into 6 QOL domains (communication, emotional, entertainment, environment, listening effort, and social). Responses to the 81 CIQOL items were analyzed using item response theory to determine individual item difficulty, discrimination, and model fit to select the set of items for the profile instrument and global measure that would optimize their measurement characteristics. Results: The 35-item CIQOL-35 Profile instrument assesses outcomes represented in the 6 domains of the CIQOL final item pool. The 10-item CIQOL-10 Global measure produces a single, overall QOL score. After ensuring the upper and lower ends of the item difficulty continuum were represented (item difficulty range: -2.48 to 2.47), the items with the highest discrimination ability for each domain were selected for the CIQOL-35 Profile instrument (discrimination range: 0.67-1.37). Items were selected for the CIQOL-10 Global measure in a similar manner. Conclusion: The CIQOL-35 Profile and CIQOL-10 Global instruments provide psychometrically sound and efficient measures that can be used to assess QOL in adult CI users in both clinical and research settings.

Original languageEnglish (US)
Pages (from-to)3554-3563
Number of pages10
JournalJournal of Speech, Language, and Hearing Research
Volume62
Issue number9
DOIs
StatePublished - Sep 2019

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Cochlear Implants
quality of life
Quality of Life
Cochlear Implant
discrimination
bank
Cochlear Implantation
Aptitude

ASJC Scopus subject areas

  • Language and Linguistics
  • Linguistics and Language
  • Speech and Hearing

Cite this

Cochlear implant quality of life (CIQOL) : Development of a profile instrument (CIQOL-35 profile) and a global measure (CIQOL-10 Global). / Cochlear Implant Quality of Life Development Consortium.

In: Journal of Speech, Language, and Hearing Research, Vol. 62, No. 9, 09.2019, p. 3554-3563.

Research output: Contribution to journalArticle

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title = "Cochlear implant quality of life (CIQOL): Development of a profile instrument (CIQOL-35 profile) and a global measure (CIQOL-10 Global)",
abstract = "Purpose: Valid, reliable, and efficient patient-reported outcome measures are needed to quantify quality of life (QOL) outcomes after cochlear implantation to supplement information obtained from performance-based outcomes. We previously developed the Cochlear Implant Quality of Life (CIQOL) item bank to serve as the source of items for subsequent instruments. This study reports the development and psychometric properties for 2 of these new instruments, the CIQOL-35 Profile and the CIQOL-10 Global. Method: Cochlear implant (CI) users referred from the CIQOL Development Consortium (n = 371), consisting of 20 CI centers across the United States, provided responses to the 81-item CIQOL item bank, which are grouped into 6 QOL domains (communication, emotional, entertainment, environment, listening effort, and social). Responses to the 81 CIQOL items were analyzed using item response theory to determine individual item difficulty, discrimination, and model fit to select the set of items for the profile instrument and global measure that would optimize their measurement characteristics. Results: The 35-item CIQOL-35 Profile instrument assesses outcomes represented in the 6 domains of the CIQOL final item pool. The 10-item CIQOL-10 Global measure produces a single, overall QOL score. After ensuring the upper and lower ends of the item difficulty continuum were represented (item difficulty range: -2.48 to 2.47), the items with the highest discrimination ability for each domain were selected for the CIQOL-35 Profile instrument (discrimination range: 0.67-1.37). Items were selected for the CIQOL-10 Global measure in a similar manner. Conclusion: The CIQOL-35 Profile and CIQOL-10 Global instruments provide psychometrically sound and efficient measures that can be used to assess QOL in adult CI users in both clinical and research settings.",
author = "{Cochlear Implant Quality of Life Development Consortium} and McRackan, {Theodore R.} and Hand, {Brittany N.} and Velozo, {Craig A.} and Dubno, {Judy R.} and Golub, {Justin S.} and Wilkinson, {Eric P.} and Dawna Mills and Carey, {John P.} and Nopawan Vorasubin and Vickie Brunk and Carlson, {Matthew L.} and Driscoll, {Colin L.} and Sladen, {Douglas P.} and Camposeo, {Elizabeth L.} and Holcomb, {Meredith A.} and Lambert, {Paul R.} and Meyer, {Ted A.} and Cameron Thomas and Moberly, {Aaron C.} and Blevins, {Nikolas H.} and Larky, {Jannine B.} and Herzano, {Ronna P.} and Hoffer, {Michael E.} and Prentiss, {Sandra M.} and Samy, {Ravi N.} and Gubbels, {Samuel P.} and Jason Brant and Hunter, {Jacob B.} and Brandon Isaacson and {Walter Kutz}, J. and Gurgel, {Richard K.} and Zeitler, {Daniel M.} and Buchman, {Craig A.} and Firszt, {Jill B.} and Gifford, {Rene H.} and Haynes, {David S.} and Labadie, {Robert F.}",
year = "2019",
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publisher = "American Speech-Language-Hearing Association (ASHA)",
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TY - JOUR

T1 - Cochlear implant quality of life (CIQOL)

T2 - Development of a profile instrument (CIQOL-35 profile) and a global measure (CIQOL-10 Global)

AU - Cochlear Implant Quality of Life Development Consortium

AU - McRackan, Theodore R.

AU - Hand, Brittany N.

AU - Velozo, Craig A.

AU - Dubno, Judy R.

AU - Golub, Justin S.

AU - Wilkinson, Eric P.

AU - Mills, Dawna

AU - Carey, John P.

AU - Vorasubin, Nopawan

AU - Brunk, Vickie

AU - Carlson, Matthew L.

AU - Driscoll, Colin L.

AU - Sladen, Douglas P.

AU - Camposeo, Elizabeth L.

AU - Holcomb, Meredith A.

AU - Lambert, Paul R.

AU - Meyer, Ted A.

AU - Thomas, Cameron

AU - Moberly, Aaron C.

AU - Blevins, Nikolas H.

AU - Larky, Jannine B.

AU - Herzano, Ronna P.

AU - Hoffer, Michael E.

AU - Prentiss, Sandra M.

AU - Samy, Ravi N.

AU - Gubbels, Samuel P.

AU - Brant, Jason

AU - Hunter, Jacob B.

AU - Isaacson, Brandon

AU - Walter Kutz, J.

AU - Gurgel, Richard K.

AU - Zeitler, Daniel M.

AU - Buchman, Craig A.

AU - Firszt, Jill B.

AU - Gifford, Rene H.

AU - Haynes, David S.

AU - Labadie, Robert F.

PY - 2019/9

Y1 - 2019/9

N2 - Purpose: Valid, reliable, and efficient patient-reported outcome measures are needed to quantify quality of life (QOL) outcomes after cochlear implantation to supplement information obtained from performance-based outcomes. We previously developed the Cochlear Implant Quality of Life (CIQOL) item bank to serve as the source of items for subsequent instruments. This study reports the development and psychometric properties for 2 of these new instruments, the CIQOL-35 Profile and the CIQOL-10 Global. Method: Cochlear implant (CI) users referred from the CIQOL Development Consortium (n = 371), consisting of 20 CI centers across the United States, provided responses to the 81-item CIQOL item bank, which are grouped into 6 QOL domains (communication, emotional, entertainment, environment, listening effort, and social). Responses to the 81 CIQOL items were analyzed using item response theory to determine individual item difficulty, discrimination, and model fit to select the set of items for the profile instrument and global measure that would optimize their measurement characteristics. Results: The 35-item CIQOL-35 Profile instrument assesses outcomes represented in the 6 domains of the CIQOL final item pool. The 10-item CIQOL-10 Global measure produces a single, overall QOL score. After ensuring the upper and lower ends of the item difficulty continuum were represented (item difficulty range: -2.48 to 2.47), the items with the highest discrimination ability for each domain were selected for the CIQOL-35 Profile instrument (discrimination range: 0.67-1.37). Items were selected for the CIQOL-10 Global measure in a similar manner. Conclusion: The CIQOL-35 Profile and CIQOL-10 Global instruments provide psychometrically sound and efficient measures that can be used to assess QOL in adult CI users in both clinical and research settings.

AB - Purpose: Valid, reliable, and efficient patient-reported outcome measures are needed to quantify quality of life (QOL) outcomes after cochlear implantation to supplement information obtained from performance-based outcomes. We previously developed the Cochlear Implant Quality of Life (CIQOL) item bank to serve as the source of items for subsequent instruments. This study reports the development and psychometric properties for 2 of these new instruments, the CIQOL-35 Profile and the CIQOL-10 Global. Method: Cochlear implant (CI) users referred from the CIQOL Development Consortium (n = 371), consisting of 20 CI centers across the United States, provided responses to the 81-item CIQOL item bank, which are grouped into 6 QOL domains (communication, emotional, entertainment, environment, listening effort, and social). Responses to the 81 CIQOL items were analyzed using item response theory to determine individual item difficulty, discrimination, and model fit to select the set of items for the profile instrument and global measure that would optimize their measurement characteristics. Results: The 35-item CIQOL-35 Profile instrument assesses outcomes represented in the 6 domains of the CIQOL final item pool. The 10-item CIQOL-10 Global measure produces a single, overall QOL score. After ensuring the upper and lower ends of the item difficulty continuum were represented (item difficulty range: -2.48 to 2.47), the items with the highest discrimination ability for each domain were selected for the CIQOL-35 Profile instrument (discrimination range: 0.67-1.37). Items were selected for the CIQOL-10 Global measure in a similar manner. Conclusion: The CIQOL-35 Profile and CIQOL-10 Global instruments provide psychometrically sound and efficient measures that can be used to assess QOL in adult CI users in both clinical and research settings.

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U2 - 10.1044/2019_JSLHR-H-19-0142

DO - 10.1044/2019_JSLHR-H-19-0142

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JO - Journal of Speech, Language, and Hearing Research

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SN - 1092-4388

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