Clients’ Perspectives on Patient-Centeredness: a Qualitative Study with Low-Income Minority Women Receiving HIV Care in South Florida

Sofia B. Fernandez, Melissa K. Ward, Daisy Ramírez-Ortiz, Annette Flores, Taidiana Gonzalez Santander, Rahel Dawit, Cynthia Ibarra, Ashley Garcia, Robert Ladner, Petra Brock, Michele Jean-Gilles, Gladys Ibañez, Jessy Dévieux, Mary Catherine Beach, Mary Jo Trepka

Research output: Contribution to journalArticlepeer-review

Abstract

Low-income, minority women living with HIV often experience multiple barriers in care that contribute to suboptimal care outcomes. Medical case managers (MCM) and medical providers are key players involved in care coordination and aid women along the HIV care continuum. The objective of this study was to identify current and potential patient-centered practices that facilitate adherence to medication and retention in care, from the perspective of racially and ethnically diverse women living with HIV. We implemented a qualitative study using semi-structured interviews with 75 African American, Hispanic/Latina, and Haitian women who were enrolled in the Ryan White HIV/AIDS Program in South Florida in 2019. We organized domains of exploration using a patient-centered care framework to identify practices in which providers acknowledged, respected, and responded to clients’ preferences, needs, and values. Interviews were analyzed using consensual thematic analysis approach. Findings reflect women valued MCMs who were proactive and directive in care, provided motivation, and aided with navigation of shame, fear, and stigma. Women valued medical providers who upheld simple educational communication. Moreover, women reported that providers who reviewed medical results with clients, incorporated questions about families, and inquired about multiple physical and clinical needs beyond HIV created opportunities for women to feel respected, valued, and in turn, enhanced their involvement in their care. Findings identify specific interpersonal practices that can enhance the ability to better meet the needs of diverse groups of women, specifically those from racial/ethnic minority groups who face multiple sociocultural barriers while in care.

Original languageEnglish (US)
Pages (from-to)930-941
Number of pages12
JournalJournal of Racial and Ethnic Health Disparities
Volume10
Issue number2
DOIs
StatePublished - Apr 2023

Keywords

  • Adherence and retention in care
  • Delivery of healthcare
  • Human immunodeficiency virus
  • Medical care provider
  • Medical case manager
  • Patient-centered care
  • Racial and ethnic minorities

ASJC Scopus subject areas

  • Health(social science)
  • Public Health, Environmental and Occupational Health
  • Anthropology
  • Health Policy
  • Sociology and Political Science

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