TY - JOUR
T1 - Chronic critical illness in infants and children
T2 - A speculative synthesis on adapting ICU care to meet the needs of long-stay patients
AU - Marcus, Katherine L.
AU - Henderson, Carrie M.
AU - Boss, Renee D.
N1 - Publisher Copyright:
© 2016 by the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.
PY - 2016/8/1
Y1 - 2016/8/1
N2 - Objectives: In this review, we examine features of ICU systems and ICU clinician training that can undermine continuity of communication and longitudinal guidance for decision making for chronically critically ill infants and children. Drawing upon a conceptual model of the dynamic interactions between patients, families, clinicians, and ICU systems, we propose strategies to promote longitudinal decision making and improve communication for infants and children with prolonged ICU stays. Data Sources: We searched MEDLINE and PubMed from inception to September 2015 for English-language articles relevant to chronic critical illness, particularly of pediatric patients. We also reviewed bibliographies of relevant studies to broaden our search. Study Selection: Two authors (physicians with experience in pediatric neonatology, critical care, and palliative care) made the final selections. Data Extraction: We critically reviewed the existing data and models of care to identify strategies for improving ICU care of chronically critically ill children. Data Synthesis: Utilizing the available data and personal experience, we addressed concerns related to family perspectives, ICU processes, and issues with ICU training that shape longitudinal decision making. Conclusions: As the number of chronically critically ill infants and children increases, specific communication and decision-making models targeted at this population could improve the feedback between acute, daily ICU decisions and the patient's overall goals of care. Adaptations to ICU systems of care and ICU clinician training will be essential components of this progress.
AB - Objectives: In this review, we examine features of ICU systems and ICU clinician training that can undermine continuity of communication and longitudinal guidance for decision making for chronically critically ill infants and children. Drawing upon a conceptual model of the dynamic interactions between patients, families, clinicians, and ICU systems, we propose strategies to promote longitudinal decision making and improve communication for infants and children with prolonged ICU stays. Data Sources: We searched MEDLINE and PubMed from inception to September 2015 for English-language articles relevant to chronic critical illness, particularly of pediatric patients. We also reviewed bibliographies of relevant studies to broaden our search. Study Selection: Two authors (physicians with experience in pediatric neonatology, critical care, and palliative care) made the final selections. Data Extraction: We critically reviewed the existing data and models of care to identify strategies for improving ICU care of chronically critically ill children. Data Synthesis: Utilizing the available data and personal experience, we addressed concerns related to family perspectives, ICU processes, and issues with ICU training that shape longitudinal decision making. Conclusions: As the number of chronically critically ill infants and children increases, specific communication and decision-making models targeted at this population could improve the feedback between acute, daily ICU decisions and the patient's overall goals of care. Adaptations to ICU systems of care and ICU clinician training will be essential components of this progress.
KW - chronic disease
KW - communication
KW - critical illness
KW - decision making
KW - intensive care units
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U2 - 10.1097/PCC.0000000000000792
DO - 10.1097/PCC.0000000000000792
M3 - Review article
C2 - 27295581
AN - SCOPUS:84974678923
SN - 1529-7535
VL - 17
SP - 743
EP - 752
JO - Pediatric Critical Care Medicine
JF - Pediatric Critical Care Medicine
IS - 8
ER -