Children’s family experiences: development of the PROMIS® pediatric family relationships measures

Katherine B. Bevans, Anne W Riley, Jeanne M. Landgraf, Adam C. Carle, Rachel E. Teneralli, Barbara H. Fiese, Lisa J. Meltzer, Anna K. Ettinger, Brandon D. Becker, Christopher B. Forrest

Research output: Contribution to journalArticle

Abstract

Purpose: To describe the development of pediatric family relationships measures, with versions for child self-report (8–17 years) and parent-report for children 5–17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS®). Methods: Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments. Results: Qualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments’ validity was provided by known-group comparisons and convergence with legacy measures. Conclusion: The PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children’s subjective family relationship experiences.

Original languageEnglish (US)
Pages (from-to)1-13
Number of pages13
JournalQuality of Life Research
DOIs
StateAccepted/In press - Jun 22 2017

Keywords

  • Child
  • Child-report
  • Family belonging
  • Family interactions
  • Family relationships
  • Parent-report
  • Social health

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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    Bevans, K. B., Riley, A. W., Landgraf, J. M., Carle, A. C., Teneralli, R. E., Fiese, B. H., Meltzer, L. J., Ettinger, A. K., Becker, B. D., & Forrest, C. B. (Accepted/In press). Children’s family experiences: development of the PROMIS® pediatric family relationships measures. Quality of Life Research, 1-13. https://doi.org/10.1007/s11136-017-1629-y