TY - JOUR
T1 - Children with autism
T2 - Quality of life and parental concerns
AU - Lee, Li Ching
AU - Harrington, Rebecca A.
AU - Louie, Brian B.
AU - Newschaffer, Craig J.
N1 - Funding Information:
This study analyzed cross-sectional parent-reported data from the National Survey of Children’s Health (NSCH), 2003. The NSCH contains data for 102,353 children aged 0–17 years, however, questions regarding quality of life and parental concerns were asked only of families with children aged 3–17. The NSCH was sponsored by the Maternal and Child Health Bureau, the US Health Resources and Services Administration, and the Centers for Disease Control and Prevention’s National Center for Health Statistics. Random-digit dialing was used to sample households with children 0–17 years of age from all 50 states and the District of Columbia in the US. The household member who is most knowledgeable about a sampled child’s health, had received the consent information, and agreed to participate in the study was the survey respondent. Specifically, 78.5% were mothers, 17.3% were fathers, and 4.2% were others. Detailed information on the development, plan, sampling,
Funding Information:
Acknowledgments The authors were supported by CDC cooperative agreement U10/CCU320408-05. We thank Andrew W. Zimmerman, MD, for his review of the manuscript and helpful comments. The analyses, interpretations, and conclusions addressed in this publication are the authors’ responsibility and do not represent the opinions of the National Center for Health Statistics. A preliminary version of this report was presented at the International Meeting for Autism Research, Montreal, Canada, June 2006.
PY - 2008/7
Y1 - 2008/7
N2 - Past research has shown that children with autism and their families have compromised quality of life (QOL) in several domains. This study examined QOL and parental concerns in children with autism during early childhood, childhood, and adolescence compared to children with Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder (ADD/ADHD) and to typical controls from a US national sample. Families with children diagnosed with autism reported more profound QOL effects than families of children with ADD/ADHD or unaffected controls. Children with autism were significantly less likely to attend religious services, more likely to miss school, and less likely to participate in organized activities. Parental concerns over learning difficulty, being bullied, stress-coping, and achievement were overwhelming in the autism group relative to the comparison groups.
AB - Past research has shown that children with autism and their families have compromised quality of life (QOL) in several domains. This study examined QOL and parental concerns in children with autism during early childhood, childhood, and adolescence compared to children with Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder (ADD/ADHD) and to typical controls from a US national sample. Families with children diagnosed with autism reported more profound QOL effects than families of children with ADD/ADHD or unaffected controls. Children with autism were significantly less likely to attend religious services, more likely to miss school, and less likely to participate in organized activities. Parental concerns over learning difficulty, being bullied, stress-coping, and achievement were overwhelming in the autism group relative to the comparison groups.
KW - ADD
KW - ADHD
KW - Autism
KW - Parental concern
KW - Quality of life
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U2 - 10.1007/s10803-007-0491-0
DO - 10.1007/s10803-007-0491-0
M3 - Article
C2 - 18058214
AN - SCOPUS:49949152472
VL - 38
SP - 1147
EP - 1160
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
SN - 0162-3257
IS - 6
ER -