Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers

Gazi F Azad, Vini Singh, Luther Kalb, Melanie Pinkett-Davis, Rebecca Landa

Research output: Contribution to journalArticlepeer-review

Abstract

We examined factors contributing to initial appointment attendance, alignment between parents’ pre-visit and clinicians’ diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.

Original languageEnglish (US)
JournalJournal of Autism and Developmental Disorders
DOIs
StatePublished - Jan 1 2019

Keywords

  • Appointment attendance
  • Autism spectrum disorder
  • Diagnostic alignment
  • Specialty care

ASJC Scopus subject areas

  • Developmental and Educational Psychology

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