Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers

Gazi F Azad, Vini Singh, Luther Kalb, Melanie Pinkett-Davis, Rebecca Landa

Research output: Contribution to journalArticle

Abstract

We examined factors contributing to initial appointment attendance, alignment between parents’ pre-visit and clinicians’ diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.

Original languageEnglish (US)
JournalJournal of Autism and Developmental Disorders
DOIs
StatePublished - Jan 1 2019

Fingerprint

Appointments and Schedules
Parents
African Americans
Sample Size
Autism Spectrum Disorder

Keywords

  • Appointment attendance
  • Autism spectrum disorder
  • Diagnostic alignment
  • Specialty care

ASJC Scopus subject areas

  • Developmental and Educational Psychology

Cite this

@article{f456e1a09609401185cb4adbb1d5d4d4,
title = "Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers",
abstract = "We examined factors contributing to initial appointment attendance, alignment between parents’ pre-visit and clinicians’ diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.",
keywords = "Appointment attendance, Autism spectrum disorder, Diagnostic alignment, Specialty care",
author = "Azad, {Gazi F} and Vini Singh and Luther Kalb and Melanie Pinkett-Davis and Rebecca Landa",
year = "2019",
month = "1",
day = "1",
doi = "10.1007/s10803-019-04027-8",
language = "English (US)",
journal = "Journal of Autism and Developmental Disorders",
issn = "0162-3257",
publisher = "Springer New York",

}

TY - JOUR

T1 - Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers

AU - Azad, Gazi F

AU - Singh, Vini

AU - Kalb, Luther

AU - Pinkett-Davis, Melanie

AU - Landa, Rebecca

PY - 2019/1/1

Y1 - 2019/1/1

N2 - We examined factors contributing to initial appointment attendance, alignment between parents’ pre-visit and clinicians’ diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.

AB - We examined factors contributing to initial appointment attendance, alignment between parents’ pre-visit and clinicians’ diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.

KW - Appointment attendance

KW - Autism spectrum disorder

KW - Diagnostic alignment

KW - Specialty care

UR - http://www.scopus.com/inward/record.url?scp=85065018634&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85065018634&partnerID=8YFLogxK

U2 - 10.1007/s10803-019-04027-8

DO - 10.1007/s10803-019-04027-8

M3 - Article

C2 - 31030311

AN - SCOPUS:85065018634

JO - Journal of Autism and Developmental Disorders

JF - Journal of Autism and Developmental Disorders

SN - 0162-3257

ER -