Characteristics influencing informed consent on a congenital malformations registry

C. Law, M. O. Robertson, S. R. Panny, L. M. Wulff

Research output: Contribution to journalArticlepeer-review


Maryland law requires that all babies born with 'sentinel birth defects' be reported to the State Department of Health, but mothers may deny consent for further contact. Consent was not strongly related to maternal age, race, or self-reported data on exposures, smoking, and drugs but was much less likely if the infant was dead. Selection bias in congenital malformations research may lead to underrepresentation of lethal defects, but self-reported data appear to be unbiased.

Original languageEnglish (US)
Pages (from-to)572-573
Number of pages2
JournalAmerican journal of public health
Issue number5
StatePublished - 1988

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health


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