Abstract
The ethical issues to be considered when assisting a family in making decisions about a child with spina bifida have varied in different geographical locations and over the past decades. Although now, in the United States, most infants are detected in utero and most detected pregnancies are terminated, the process by which such decisions should be made rarely seems to meet the standards of a good decision-making process. The small numbers of infants born with spina bifida require careful decision-making by the physician-parent-healthcare team. These decisions must be made in light of conflicting interpretations of current health care regulations and court rulings.
Original language | English (US) |
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Pages (from-to) | 302-307 |
Number of pages | 6 |
Journal | Mental Retardation and Developmental Disabilities Research Reviews |
Volume | 4 |
Issue number | 4 |
DOIs | |
State | Published - 1998 |
Externally published | Yes |
Keywords
- Decision-making in newborn
- Ethics
- Myelomeningocele
- Spina bifida
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
- Neuropsychology and Physiological Psychology
- Genetics(clinical)