TY - JOUR
T1 - Caring for grieving family members
T2 - Results from a national hospice survey
AU - Barry, Colleen L.
AU - Carlson, Melissa D.A.
AU - Thompson, Jennifer W.
AU - Schlesinger, Mark
AU - McCorkle, Ruth
AU - Kasl, Stanislav V.
AU - Bradley, Elizabeth H.
PY - 2012/7
Y1 - 2012/7
N2 - Background: A founding principle of hospice is that the patient and family is the unit of care; however, we lack national information on services to family members. Although Medicare certification requires bereavement services be provided, reimbursement rates are not tied to the level or quality of care; therefore, limited financial incentives exist for hospice to provide more than a minimal benefit. Objectives: To assess the scope and intensity of services provided to family members by hospice. Research Design: We fielded a national survey of hospices between September 2008 and November 2009. Participants: A national sample of US hospices with an 84% response rate (N=591). Measures: Bereavement services to the family, bereavement services to the community, labor-intensive family services, and comprehensive family services. Results: Most hospices provided bereavement services to the family (78%) and to the community (76%), but only a minority of hospices provided labor-intensive (23%) or comprehensive (27%) services to grieving family members. Larger hospice size was positively and significantly associated with each of the 4 measures of family services. We found no significant difference in provision of bereavement services to the family, labor-intensive services, or comprehensive services by ownership type; however, nonprofit hospices were more likely than for-profit hospices to provide bereavement services to the community. Conclusions: Our results show substantial diversity in the scope and intensity of services provided to families of patients with terminal illnesses, suggesting a need for clearer guidance on what hospices should provide to exemplify best practices. Consensus within the field on more precise guidelines in this area is essential.
AB - Background: A founding principle of hospice is that the patient and family is the unit of care; however, we lack national information on services to family members. Although Medicare certification requires bereavement services be provided, reimbursement rates are not tied to the level or quality of care; therefore, limited financial incentives exist for hospice to provide more than a minimal benefit. Objectives: To assess the scope and intensity of services provided to family members by hospice. Research Design: We fielded a national survey of hospices between September 2008 and November 2009. Participants: A national sample of US hospices with an 84% response rate (N=591). Measures: Bereavement services to the family, bereavement services to the community, labor-intensive family services, and comprehensive family services. Results: Most hospices provided bereavement services to the family (78%) and to the community (76%), but only a minority of hospices provided labor-intensive (23%) or comprehensive (27%) services to grieving family members. Larger hospice size was positively and significantly associated with each of the 4 measures of family services. We found no significant difference in provision of bereavement services to the family, labor-intensive services, or comprehensive services by ownership type; however, nonprofit hospices were more likely than for-profit hospices to provide bereavement services to the community. Conclusions: Our results show substantial diversity in the scope and intensity of services provided to families of patients with terminal illnesses, suggesting a need for clearer guidance on what hospices should provide to exemplify best practices. Consensus within the field on more precise guidelines in this area is essential.
KW - Bereavement
KW - Family caregiver
KW - Hospice
KW - Ownership
UR - http://www.scopus.com/inward/record.url?scp=84863393124&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84863393124&partnerID=8YFLogxK
U2 - 10.1097/MLR.0b013e318248661d
DO - 10.1097/MLR.0b013e318248661d
M3 - Article
C2 - 22310561
AN - SCOPUS:84863393124
SN - 0025-7079
VL - 50
SP - 578
EP - 584
JO - Medical care
JF - Medical care
IS - 7
ER -