Cancer genetic counselor information needs for risk communication: A qualitative evaluation of interview transcripts

Casey Overby, Wendy K. Chung, George Hripcsak, Rita Kukafka

Research output: Contribution to journalArticle

Abstract

Personalized medicine is a model of healthcare that is predictive, personalized, preventive and participatory ("P4 Medicine"). Genetic counselors are an ideal group to study when designing tools to support cancer P4 Medicine activities more broadly. The goal for this work was to gain a better understanding of the information cancer genetic counselors seek from their patients to facilitate effective information exchange for discussing risk. This was an analysis of a qualitative data set from interviews of eight cancer genetic counselors, recruited from three institutions. Genetic counselors at each site were interviewed using a semi-structured, open-ended questionnaire. A selective coding approach was used to determine major themes associated with genetic counseling information needs for communicating risk. We generated a model for understanding categories of genetic counseling information needs to support risk communication activities. Common activities for risk communication included risk assessment and tailoring communication. Categories of information needs included: (a) clinical patient characteristics, (b) social and cognitive patient characteristics and (c) patient motivation and goals for the genetic counseling session. A logical next step is for this model to inform the design of software systems for pre-visit patient planning and delivering just-in-time educational information to facilitate cancer risk communication activities.

Original languageEnglish (US)
Pages (from-to)238-250
Number of pages13
JournalJournal of Personalized Medicine
Volume3
Issue number3
DOIs
Publication statusPublished - Jan 1 2013
Externally publishedYes

    Fingerprint

Keywords

  • Cancer genetic counseling
  • Information exchange
  • Information needs
  • Needs assessment

ASJC Scopus subject areas

  • Medicine (miscellaneous)

Cite this