Building bridges between researchers and patient research partners

A report from the grappa 2014 annual meeting

Maarten De Wit, Willemina Campbell, Ana-Maria Orbai, William Tillett, Oliver Fitzgerald, Dafna D. Gladman, Chris A. Lindsay, Neil J. McHugh, Philip J. Mease, Denis O'Sullivan, Ingrid Steinkoenig, Glenn Windisch, Niti Goel

Research output: Contribution to journalArticle

Abstract

for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA's vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA's working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.

Original languageEnglish (US)
Pages (from-to)1021-1026
Number of pages6
JournalJournal of Rheumatology
Volume42
Issue number6
DOIs
StatePublished - Jun 1 2015

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Research Personnel
Psoriatic Arthritis
Research
Psoriasis
Group Processes

Keywords

  • GRAPPA
  • PATIENT PARTICIPATION
  • PATIENT RESEARCH PARTNERS
  • RESEARCH
  • RHEUMATOLOGY

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Immunology and Allergy

Cite this

Building bridges between researchers and patient research partners : A report from the grappa 2014 annual meeting. / De Wit, Maarten; Campbell, Willemina; Orbai, Ana-Maria; Tillett, William; Fitzgerald, Oliver; Gladman, Dafna D.; Lindsay, Chris A.; McHugh, Neil J.; Mease, Philip J.; O'Sullivan, Denis; Steinkoenig, Ingrid; Windisch, Glenn; Goel, Niti.

In: Journal of Rheumatology, Vol. 42, No. 6, 01.06.2015, p. 1021-1026.

Research output: Contribution to journalArticle

De Wit, M, Campbell, W, Orbai, A-M, Tillett, W, Fitzgerald, O, Gladman, DD, Lindsay, CA, McHugh, NJ, Mease, PJ, O'Sullivan, D, Steinkoenig, I, Windisch, G & Goel, N 2015, 'Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting', Journal of Rheumatology, vol. 42, no. 6, pp. 1021-1026. https://doi.org/10.3899/jrheum.150123
De Wit, Maarten ; Campbell, Willemina ; Orbai, Ana-Maria ; Tillett, William ; Fitzgerald, Oliver ; Gladman, Dafna D. ; Lindsay, Chris A. ; McHugh, Neil J. ; Mease, Philip J. ; O'Sullivan, Denis ; Steinkoenig, Ingrid ; Windisch, Glenn ; Goel, Niti. / Building bridges between researchers and patient research partners : A report from the grappa 2014 annual meeting. In: Journal of Rheumatology. 2015 ; Vol. 42, No. 6. pp. 1021-1026.
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