Beyond consent in research: Revisiting vulnerability in deep brain stimulation for psychiatric disorders

Emily Bell, Eric Racine, Paula Chiasson, Maya Dufourcq-Brana, Laura B. Dunn, Joseph J. Fins, Paul J. Ford, Walter Glannon, Nir Lipsman, Mary Ellen Macdonald, Debra J.H. Mathews, Mary Pat McAndrews

Research output: Contribution to journalArticle

Abstract

Vulnerability is an important criterion to assess the ethical justification of the inclusion of participants in research trials. Currently, vulnerability is often understood as an attribute inherent to a participant by nature of a diagnosed condition. Accordingly, a common ethical concern relates to the participant's decisionmaking capacity and ability to provide free and informed consent. We propose an expanded view of vulnerability that moves beyond a focus on consent and the intrinsic attributes of participants. We offer specific suggestions for how relational aspects and the dynamic features of vulnerability could be more fully captured in current discussions and research practices.

Original languageEnglish (US)
Pages (from-to)361-368
Number of pages8
JournalCambridge Quarterly of Healthcare Ethics
Volume23
Issue number3
DOIs
StatePublished - Jul 2014
Externally publishedYes

Keywords

  • Deep brain stimulation
  • Informed consent
  • Neuroethics
  • Psychiatry
  • Research
  • Vulnerability

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health(social science)
  • Health Policy

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  • Cite this

    Bell, E., Racine, E., Chiasson, P., Dufourcq-Brana, M., Dunn, L. B., Fins, J. J., Ford, P. J., Glannon, W., Lipsman, N., Macdonald, M. E., Mathews, D. J. H., & McAndrews, M. P. (2014). Beyond consent in research: Revisiting vulnerability in deep brain stimulation for psychiatric disorders. Cambridge Quarterly of Healthcare Ethics, 23(3), 361-368. https://doi.org/10.1017/S0963180113000984