TY - JOUR
T1 - Beliefs regarding development and early intervention among low-income african American and hispanic mothers
AU - Magnusson, Dawn M.
AU - Minkovitz, Cynthia S.
AU - Kuhlthau, Karen A.
AU - Caballero, Tania M.
AU - Mistry, Kamila B.
N1 - Funding Information:
Copyright © 2017 by the American Academy of Pediatrics Financial disclosuRe: The authors have indicated they have no financial relationships relevant to this article to disclose. FundinG: Supported by the Health Resources and Services Administration of the US Department of Health and Human Services under HRSA T32HP10004: Training for Careers in Pediatric Primary Care Research, sponsored by a National Research Service Award; a 2015 Academic Pediatric Association and Bright Futures Young Investigator Award; and the Agency for Healthcare Research and Quality. The funding sources were not involved in the study design; in the collection, analysis, or interpretation of the data; in the writing of the report; or in the decision to submit the article for publication. The views expressed in this article are those of the authors, and no official endorsement by the Agency for Healthcare Research and Quality or the Department of Health and Human Services is intended or should be inferred.
Publisher Copyright:
Copyright © 2017 by the American Academy of Pediatrics.
PY - 2017/11
Y1 - 2017/11
N2 - OBJECTIVES: Understand the role of health beliefs in shaping maternal decisions regarding help-seeking for children with developmental delay (DD) and explore differences between African American and Hispanic mothers. METHODS: Open-ended, semistructured interviews were conducted with African American and Hispanic mothers of children aged 0 to 36 months with DD. Interviews were recorded, transcribed, and analyzed by using inductive content analysis. RESULTS: Mothers (n = 22) were African American (36%) or Hispanic (64%), 25 to 34 years old (64%), had less than a high school education (59%), and had children receiving public insurance (95%). Five major themes emerged describing the role of maternal health beliefs in shaping key stages of the help-seeking pathway for children with DD: (1) "I can see" (observing other children and making comparisons); (2) "Children are different and develop in their own time" (perceiving that their child might be different, but not necessarily delayed); (3) "It's not that I don't trust the doctor" (relying on social networks rather than pediatricians to inform the help-seeking pathway); (4) "I got so much going on" (difficulty prioritizing early intervention [EI] because of competing stressors); and (5) limited and conflicting information (delaying or forgoing EI because of limited or conflicting information). Differences between African American and Hispanic mothers are also described. CONCLUSIONS: Understanding maternal health beliefs and expectations regarding DD and EI, acknowledging the influence of social networks on help-seeking, and addressing social and financial stressors are critical to ensuring that children with DD are identified and supported at an early age.
AB - OBJECTIVES: Understand the role of health beliefs in shaping maternal decisions regarding help-seeking for children with developmental delay (DD) and explore differences between African American and Hispanic mothers. METHODS: Open-ended, semistructured interviews were conducted with African American and Hispanic mothers of children aged 0 to 36 months with DD. Interviews were recorded, transcribed, and analyzed by using inductive content analysis. RESULTS: Mothers (n = 22) were African American (36%) or Hispanic (64%), 25 to 34 years old (64%), had less than a high school education (59%), and had children receiving public insurance (95%). Five major themes emerged describing the role of maternal health beliefs in shaping key stages of the help-seeking pathway for children with DD: (1) "I can see" (observing other children and making comparisons); (2) "Children are different and develop in their own time" (perceiving that their child might be different, but not necessarily delayed); (3) "It's not that I don't trust the doctor" (relying on social networks rather than pediatricians to inform the help-seeking pathway); (4) "I got so much going on" (difficulty prioritizing early intervention [EI] because of competing stressors); and (5) limited and conflicting information (delaying or forgoing EI because of limited or conflicting information). Differences between African American and Hispanic mothers are also described. CONCLUSIONS: Understanding maternal health beliefs and expectations regarding DD and EI, acknowledging the influence of social networks on help-seeking, and addressing social and financial stressors are critical to ensuring that children with DD are identified and supported at an early age.
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U2 - 10.1542/peds.2017-2059
DO - 10.1542/peds.2017-2059
M3 - Article
C2 - 29038343
AN - SCOPUS:85033574004
SN - 0031-4005
VL - 140
JO - Pediatrics
JF - Pediatrics
IS - 5
M1 - e20172059
ER -