Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Ashley N. Cabacungan, Matthew J. Ellis, Debra Sudan, Tara S. Strigo, Iris Pounds, Jennie A. Riley, Margaret Falkovic, Aviel N. Alkon, Sarah B. Peskoe, Clemontina A. Davenport, Jane F. Pendergast, Patti L. Ephraim, Dinushika Mohottige, Clarissa J. Diamantidis, Jennifer St. Clair Russell, Nicole DePasquale, L. Ebony Boulware

Research output: Contribution to journalArticle

Abstract

We studied associations between perceived adequacy of live donor kidney transplant (LDKT) information or knowledge with pursuit of LDKT or receipt of live donor inquiries among 300 African American kidney transplant candidates. Participants reported via questionnaire how informed or knowledgeable they felt regarding LDKT. Participants also reported their pursuit of LDKT, categorized as “low” (no discussion with family or friends about LDKT and no identified donor), “intermediate” (discussed LDKT with family but no identified donor) or “high” (discussed LDKT with family and identified a potential donor). We reviewed participants' electronic health records to identify potential donors' transplant center inquiries on participants' behalves. A minority of participants reported they felt “very” or “extremely” well informed about LDKT (39%) or had “a great deal” of LDKT knowledge (38%). Participants perceiving themselves as “very” or “extremely” (vs “not” or “slightly”) well informed about LDKT had statistically significantly greater odds of intermediate or high (vs low) pursuit of LDKT (odds ratio [95% confidence interval] 2.71 [1.02-7.17]). Perceived LDKT knowledge was not associated with pursuit of LDKT. Neither perceived information adequacy nor knowledge was associated with living donor inquiries. Efforts to better understand the role of education in the pursuit of LDKT among African American transplant candidates are needed.

Original languageEnglish (US)
Article numbere13799
JournalClinical Transplantation
Volume34
Issue number3
DOIs
StatePublished - Mar 1 2020

Keywords

  • donors and donation
  • donors and donation: living
  • education
  • kidney transplantation: living donor
  • patient education

ASJC Scopus subject areas

  • Transplantation

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    Cabacungan, A. N., Ellis, M. J., Sudan, D., Strigo, T. S., Pounds, I., Riley, J. A., Falkovic, M., Alkon, A. N., Peskoe, S. B., Davenport, C. A., Pendergast, J. F., Ephraim, P. L., Mohottige, D., Diamantidis, C. J., St. Clair Russell, J., DePasquale, N., & Boulware, L. E. (2020). Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates. Clinical Transplantation, 34(3), [e13799]. https://doi.org/10.1111/ctr.13799