An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics

Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis, Tom L. Beauchamp

Research output: Contribution to journalArticlepeer-review

Abstract

Calls are increasing for American health care to be organized as a learning health care system, defined by the Institute of Medicine as a health care system "in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care." We applaud this conception, and in this paper, we put forward a new ethics framework for it. No such framework has previously been articulated. The goals of our framework are twofold: to support the transformation to a learning health care system and to help ensure that learning activities carried out within such a system are conducted in an ethically acceptable fashion.

Original languageEnglish (US)
Pages (from-to)S16-S27
JournalHastings Center Report
Volume43
Issue numberSUPPL. 1
DOIs
StatePublished - Jan 1 2013

ASJC Scopus subject areas

  • Health(social science)
  • Issues, ethics and legal aspects
  • Philosophy
  • Health Policy

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