TY - JOUR
T1 - An environmental scan of advance care planning decision aids for patients undergoing major surgery
T2 - A study protocol
AU - Aslakson, Rebecca A.
AU - Schuster, Anne L.R.
AU - Miller, Judith
AU - Weiss, Matthew
AU - Volandes, Angelo E.
AU - Bridges, John F.P.
N1 - Funding Information:
The American Cancer Society, the American Geriatrics Society, The American Academy of Hospice and Palliative Medicine, the Center to Advance Palliative Care, the National Palliative Care Research Center, National Institute of Health-National Institute for Aging, the Coalition to Transform Advanced Care, AARP, the Informed Medical Decisions Foundation, the Center for Shared Decision Making, the International Patient Decision Aids Standards, National Quality Forum, Family Caregiver Alliance, Gerontological Society of America, Medline Plus (NIH), National Cancer Institute, National Hospice and Palliative Care Organization, Heart Failure Society of America, Agency for Healthcare Research and Quality, Mayo Clinic, the National Coalition of Cancer Survivors, and the American Society of Clinical Oncology.
Funding Information:
The environmental scan is the first component of a three-year study funded by the Patient-Centered Outcomes Research Institute (PCORI) and informs the next stages of research to develop an advance care planning decision aid for surgery patients and their families. The study team is a partnership between researchers, clinicians, and patient-family advocates. The project itself originated through conversations between a patient-family advocate (JM) and the study principal investigator (RAA). As project details developed, additional patient and family advocates who had experiences with pancreatic cancer were recruited to the team and have been involved with all aspects of study development. One patient and two family advocates are study co-investigators.
PY - 2014/6
Y1 - 2014/6
N2 - Background: Patients who undergo major surgery are at risk for perioperative morbidity and mortality. It would be appropriate to initiate advance care planning with patients prior to surgery, but surgeons may experience difficulty initiating such conversations. Rather than focus on changing clinician behavior, advance care planning decision aids can be an innovative vehicle to motivate advance care planning among surgical patients and their families. Objective: The purpose of this paper is to describe a study protocol for conducting an environmental scan concerning advance care planning decision aids that may be relevant to patients undergoing high-risk surgery. Methods/design: This study will gather information from written or verbal data sources that incorporate professional and lay perspectives: a systematic review, a grey literature review, key informant interviews, and patient and family engagement. It is envisioned that this study will generate three outcomes: a synthesis of current evidence, a summary of gaps in knowledge, and a taxonomy of existing advance care planning decision aids. Discussion: This environmental scan will demonstrate principles of patient-centered outcomes research, and it will exemplify a pioneering approach for reviewing complex interventions. Anticipated limitations are that information will be gathered from a small sample of patients and families, and that potentially relevant information could also be missing from the environmental scan due to the inclusion/exclusion criteria. Outcomes from the environmental scan will inform future patient-centered research to develop and evaluate a new decision aid.
AB - Background: Patients who undergo major surgery are at risk for perioperative morbidity and mortality. It would be appropriate to initiate advance care planning with patients prior to surgery, but surgeons may experience difficulty initiating such conversations. Rather than focus on changing clinician behavior, advance care planning decision aids can be an innovative vehicle to motivate advance care planning among surgical patients and their families. Objective: The purpose of this paper is to describe a study protocol for conducting an environmental scan concerning advance care planning decision aids that may be relevant to patients undergoing high-risk surgery. Methods/design: This study will gather information from written or verbal data sources that incorporate professional and lay perspectives: a systematic review, a grey literature review, key informant interviews, and patient and family engagement. It is envisioned that this study will generate three outcomes: a synthesis of current evidence, a summary of gaps in knowledge, and a taxonomy of existing advance care planning decision aids. Discussion: This environmental scan will demonstrate principles of patient-centered outcomes research, and it will exemplify a pioneering approach for reviewing complex interventions. Anticipated limitations are that information will be gathered from a small sample of patients and families, and that potentially relevant information could also be missing from the environmental scan due to the inclusion/exclusion criteria. Outcomes from the environmental scan will inform future patient-centered research to develop and evaluate a new decision aid.
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U2 - 10.1007/s40271-014-0046-3
DO - 10.1007/s40271-014-0046-3
M3 - Article
C2 - 24469597
AN - SCOPUS:84905719565
SN - 1178-1653
VL - 7
SP - 207
EP - 217
JO - Patient
JF - Patient
IS - 2
ER -