@article{61a5fb868e67497faa9d7ff50447f780,
title = "A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making",
abstract = "Patient race/ethnicity affects health care utilization, provider trust, and treatment choice. It is uncertain how these influences affect pediatric care. We performed a systematic review (PubMed, Scopus, Web of Science, PsycINFO, Cochrane, and Embase) for articles examining race/ethnicity and parental treatment decision-making, adhering to PRISMA methodology. A total of 9200 studies were identified, and 17 met inclusion criteria. Studies focused on treatment decisions concerning end-of-life care, human papillomavirus vaccination, urological surgery, medication regimens, and dental care. Findings were not uniform between studies; however, pooled results showed (1) racial/ethnic minorities tended to prefer more aggressive end-of-life care; (2) familial tradition of neonatal circumcision influenced the decision to circumcise; and (3) non-Hispanic Whites were less likely to pursue human papillomavirus vaccination but more likely to complete the vaccine series if initiated. The paucity of studies precluded overarching findings regarding the influence of race/ethnicity on parental treatment decisions. Further investigation may improve family-centered communication, parent engagement, and shared decision-making.",
keywords = "caregiver, decision-making, parent, pediatrics, race/ethnicity, systematic review, treatment",
author = "Harris, {Vandra C.} and Links, {Anne R.} and Jonathan Walsh and Schoo, {Desi P.} and Lee, {Andrew H.} and Tunkel, {David E.} and Boss, {Emily F.}",
note = "Funding Information: We thank Stella Seal for assistance with collection of database search results. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Dr Harris is support by the National Institute on Deafness and Other Communication Disorders (Grant 5T32DC000027-27) for research training in otolaryngology. Dr Boss is supported by the Agency for Healthcare Research and Quality (Grant K08HS022932). The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality. Dr Boss is also supported by the American Society of Pediatric Otolaryngology Career Development Award. Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Dr Harris is support by the National Institute on Deafness and Other Communication Disorders (Grant 5T32DC000027-27) for research training in otolaryngology. Dr Boss is supported by the Agency for Healthcare Research and Quality (Grant K08HS022932). The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality. Dr Boss is also supported by the American Society of Pediatric Otolaryngology Career Development Award. Publisher Copyright: {\textcopyright} The Author(s) 2018.",
year = "2018",
month = oct,
day = "1",
doi = "10.1177/0009922818788307",
language = "English (US)",
volume = "57",
pages = "1453--1464",
journal = "Clinical Pediatrics",
issn = "0009-9228",
publisher = "SAGE Publications Inc.",
number = "12",
}