A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment?

Xinyi Ng, John F P Bridges, Melissa M. Ross, Emily Jane Frosch, Gloria Reeves, Charles E. Cunningham, Susan DosReis

Research output: Contribution to journalArticle

Abstract

Objectives: To investigate variation in caregiver preferences for their child’s attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. Methods: Caregivers of a child aged 4–14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child’s treatment, and caregiver preferences—elicited using a best-worst scaling experiment (case 2). Latent class analysis was used to identify distinct preference segments and bivariate analyses were used to compare the association between segment membership with what the child was currently receiving for their ADHD. Results: Participants (n = 184) were predominantly White (68%) and the child’s mother (84%). Most children had ADHD for 2 or more years (79%). Caregiver preferences were distinguished by two segments: continuous medication (36%) and minimal medication (64%). The two groups had very different preferences for when medication was administered (p < 0.001), but they had similar preferences for provider-oriented and non-medication interventions (p > 0.05 for the caregiver behavior training, provider communication, provider specialty, and out-of-pocket costs). One third of the sample did not receive the preferred individualized education program and 42% of the minimal medication group reported using medication 7 days a week all year round. Conclusions: Although behavior management training and school accommodations aspects of an ADHD care plan are more important to caregivers than evidence-based medication, fewer families had access to educational accommodations. Further research is needed to clarify how stated preferences for care align with treatments used in actual practice settings.

Original languageEnglish (US)
Pages (from-to)1-12
Number of pages12
JournalPatient
DOIs
StateAccepted/In press - Oct 31 2016

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Attention Deficit Disorder with Hyperactivity
Caregivers
Therapeutics
Health Expenditures
Ambulatory Care Facilities
Communication
Mothers
Demography
Pediatrics
Education
Research

ASJC Scopus subject areas

  • Nursing (miscellaneous)

Cite this

A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment : Do Stated Preferences Match Current Treatment? / Ng, Xinyi; Bridges, John F P; Ross, Melissa M.; Frosch, Emily Jane; Reeves, Gloria; Cunningham, Charles E.; DosReis, Susan.

In: Patient, 31.10.2016, p. 1-12.

Research output: Contribution to journalArticle

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abstract = "Objectives: To investigate variation in caregiver preferences for their child’s attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. Methods: Caregivers of a child aged 4–14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child’s treatment, and caregiver preferences—elicited using a best-worst scaling experiment (case 2). Latent class analysis was used to identify distinct preference segments and bivariate analyses were used to compare the association between segment membership with what the child was currently receiving for their ADHD. Results: Participants (n = 184) were predominantly White (68{\%}) and the child’s mother (84{\%}). Most children had ADHD for 2 or more years (79{\%}). Caregiver preferences were distinguished by two segments: continuous medication (36{\%}) and minimal medication (64{\%}). The two groups had very different preferences for when medication was administered (p < 0.001), but they had similar preferences for provider-oriented and non-medication interventions (p > 0.05 for the caregiver behavior training, provider communication, provider specialty, and out-of-pocket costs). One third of the sample did not receive the preferred individualized education program and 42{\%} of the minimal medication group reported using medication 7 days a week all year round. Conclusions: Although behavior management training and school accommodations aspects of an ADHD care plan are more important to caregivers than evidence-based medication, fewer families had access to educational accommodations. Further research is needed to clarify how stated preferences for care align with treatments used in actual practice settings.",
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