TY - JOUR
T1 - A Call to Action to Address Disparities in Palliative Care Access
T2 - A Conceptual Framework for Individualizing Care Needs
AU - Nelson, Katie E.
AU - Wright, Rebecca
AU - Fisher, Marlena
AU - Koirala, Binu
AU - Roberts, Benjamin
AU - Sloan, Danetta H.
AU - Wu, David S.
AU - Davidson, Patricia M.
N1 - Publisher Copyright:
© Copyright 2021, Mary Ann Liebert, Inc.
PY - 2021/2
Y1 - 2021/2
N2 - Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.
AB - Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.
KW - COVID-19
KW - conceptual framework
KW - health care disparities
KW - palliative care
KW - race factors
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U2 - 10.1089/jpm.2020.0435
DO - 10.1089/jpm.2020.0435
M3 - Article
C2 - 33026944
AN - SCOPUS:85099299440
SN - 1096-6218
VL - 24
SP - 177
EP - 180
JO - Journal of palliative medicine
JF - Journal of palliative medicine
IS - 2
ER -