A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs

Katie E. Nelson, Rebecca Wright, Marlena Fisher, Binu Koirala, Benjamin Roberts, Danetta H. Sloan, David S. Wu, Patricia M. Davidson

Research output: Contribution to journalArticlepeer-review

Abstract

Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.

Original languageEnglish (US)
Pages (from-to)177-180
Number of pages4
JournalJournal of palliative medicine
Volume24
Issue number2
DOIs
StatePublished - Feb 2021

Keywords

  • COVID-19
  • conceptual framework
  • health care disparities
  • palliative care
  • race factors

ASJC Scopus subject areas

  • Nursing(all)
  • Anesthesiology and Pain Medicine

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