1976 …2019

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Article
2019

Women’s views about contraception requirements for biomedical research participation

Sullivan, K. A., Little, M. O., Rosenberg, N. E., Zimba, C., Jaffe, E., Gilbert, S., Coleman Fennell, J. S., Hoffman, I., Mtande, T., Anderson, J., Gross, M. S., Rahangdale, L., Faden, R. R. & Lyerly, A. D., May 1 2019, In : PloS one. 14, 5, e0216332.

Research output: Contribution to journalArticle

Open Access
2018
Open Access

Scarce Resource Allocation During Disasters: A Mixed-Method Community Engagement Study

Daugherty Biddison, E., Gwon, H. S., Schoch-Spana, M., Regenberg, A. C., Juliano, C., Faden, R. R. & Toner, E., Jan 1 2018, In : Chest. 153, 1, p. 187-195 9 p.

Research output: Contribution to journalArticle

Stakeholder perspectives regarding alternate approaches to informed consent for comparative effectiveness research

Morain, S. R., Tambor, E., Moloney, R., Kass, N. E., Tunis, S., Hallez, K. & Faden, R. R., Jan 1 2018, In : Learning Health Systems. 2, 2, e10047.

Research output: Contribution to journalArticle

Open Access

Women’s Views About a Paternal Consent Requirement for Biomedical Research in Pregnancy

Sullivan, K. A., Little, M., Rosenberg, N. E., Mtande, T., Zimba, C., Jaffe, E., Anderson, J., Coleman Fennell, J. S., Gilbert, S., Gross Wolf, M. S., Hoffman, I., Rahangdale, L., Faden, R. R. & Lyerly, A. D., Jul 1 2018, (Accepted/In press) In : Journal of Empirical Research on Human Research Ethics.

Research output: Contribution to journalArticle

2017

Deliberative Engagement Methods for Patient-Centered Outcomes Research

Morain, S. R., Whicher, D. M., Kass, N. E. & Faden, R. R., Apr 3 2017, (Accepted/In press) In : Patient. p. 1-8 8 p.

Research output: Contribution to journalArticle

Research with Pregnant Women: New Insights on Legal Decision-Making

Mastroianni, A. C., Henry, L. M., Robinson, D., Bailey, T., Faden, R. R., Little, M. O. & Lyerly, A. D., May 1 2017, In : Hastings Center Report. 47, 3, p. 38-45 8 p.

Research output: Contribution to journalArticle

2016

Alternative consent models for comparative effectiveness studies: Views of patients from two institutions

Kass, N. E., Faden, R. R., Fabi, R. E., Morain, S., Hallez, K., Whicher, D., Tunis, S., Moloney, R., Messner, D. & Pitcavage, J., Apr 6 2016, (Accepted/In press) In : AJOB Empirical Bioethics. p. 1-14 14 p.

Research output: Contribution to journalArticle

2015

Respect and dignity: a conceptual model for patients in the intensive care unit

Henry, L. M. E., Rushton, C., Beach, M. C. A. & Faden, R., Jan 1 2015, In : Narrative inquiry in bioethics. 5, 1, p. 5A-14A

Research output: Contribution to journalArticle

The views of quality improvement professionals and comparative effectiveness researchers on ethics, IRBs, and oversight

Whicher, D., Kass, N. E., Saghai, Y., Faden, R. R., Tunis, S. & Pronovost, P., Apr 1 2015, In : Journal of Empirical Research on Human Research Ethics. 10, 2, p. 132-144 13 p.

Research output: Contribution to journalArticle

2014

Chemotherapy drug shortages in pediatric oncology: A consensus statement

DeCamp, M., Joffe, S., Fernandez, C. V., Faden, R. R. & Unguru, Y., 2014, In : Pediatrics. 133, 3

Research output: Contribution to journalArticle

Informed consent, comparative effectiveness, and learning health care

Faden, R. R., Beauchamp, T. L. & Kass, N. E., 2014, In : New England Journal of Medicine. 370, 8, p. 766-768 3 p.

Research output: Contribution to journalArticle

The community speaks: Understanding ethical values in allocation of scarce lifesaving resources during disasters

Daugherty Biddison, E., Gwon, H., Schoch-Spana, M., Cavalier, R., White, D. B., Dawson, T., Terry, P. B., London, A. J., Regenberg, A., Faden, R. R. & Toner, E., 2014, In : Annals of the American Thoracic Society. 11, 5, p. 777-783 7 p.

Research output: Contribution to journalArticle

The value of unhealthy eating and the ethics of healthy eating policies

Barnhill, A., King, K. F., Kass, N. E. & Faden, R. R., 2014, In : Kennedy Institute of Ethics Journal. 24, 3, p. 187-217 31 p.

Research output: Contribution to journalArticle

2013

An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics

Faden, R. R., Kass, N. E., Goodman, S. N., Pronovost, P., Tunis, S. & Beauchamp, T. L., Jan 1 2013, In : Hastings Center Report. 43, SUPPL. 1, p. S16-S27

Research output: Contribution to journalArticle

Ethics and informed consent for comparative effectiveness research with prospective electronic clinical data

Faden, R., Kass, N., Whicher, D., Stewart, W. & Tunis, S., Aug 1 2013, In : Medical care. 51, 8 SUPPL.3, p. S53-S57

Research output: Contribution to journalArticle

Long-term acute care hospitals: A clinical, economic, and ethical dilemma

De Lissovoy, G., Pronovost, P. J. & Faden, R. R., Jan 2013, In : Medical Care. 51, 1, p. 1-3 3 p.

Research output: Contribution to journalArticle

Social practices, public health and the twin aims of justice: Responses to comments

Powers, M. & Faden, R. R., Apr 2013, In : Public Health Ethics. 6, 1, p. 45-49 5 p.

Research output: Contribution to journalArticle

The Research-Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight

Kass, N. E., Faden, R. R., Goodman, S. N., Pronovost, P., Tunis, S. & Beauchamp, T. L., Jan 2013, In : The Hastings Center report. 43, SUPPL. 1

Research output: Contribution to journalArticle

2012

Ethical considerations in studying drug safety - The institute of medicine report

Mello, M. M., Goodman, S. N. & Faden, R. R., Sep 6 2012, In : New England Journal of Medicine. 367, 10, p. 959-964 6 p.

Research output: Contribution to journalArticle

Liberty, Mill and the framework of public health ethics

Powers, M., Faden, R. R. & Saghai, Y., Apr 2012, In : Public Health Ethics. 5, 1, p. 6-15 10 p.

Research output: Contribution to journalArticle

The obligation to prevent the next dual-use controversy

Faden, R. R. & Karron, R. A., Feb 17 2012, In : Science. 335, 6070, p. 802-804 3 p.

Research output: Contribution to journalArticle

Women's views about participating in research while pregnant

Lyerly, A. D., Namey, E. E., Gray, B., Swamy, G. & Faden, R. R., Jul 2012, In : IRB Ethics and Human Research. 34, 4, p. 1-8 8 p.

Research output: Contribution to journalArticle

2011

A social justice framework for health and science policy

Faden, R. & Powers, M., Oct 1 2011, In : Cambridge Quarterly of Healthcare Ethics. 20, 4, p. 596-604 9 p.

Research output: Contribution to journalArticle

Eliminating drug price differentials across government programmes in the USA

Chalkidou, K., Anderson, G. F. & Faden, R., Jan 1 2011, In : Health Economics, Policy and Law. 6, 1, p. 43-64 22 p.

Research output: Contribution to journalArticle

Health capabilities, outcomes, and the political ends of justice

Powers, M. & Faden, R., Jan 1 2011, In : Journal of Human Development and Capabilities. 12, 4, p. 565-570 6 p.

Research output: Contribution to journalArticle

Learning health care systems and justice.

Faden, R. R., Beauchamp, T. L. & Kass, N. E., Jul 2011, In : The Hastings Center report. 41, 4, p. 3 1 p.

Research output: Contribution to journalArticle

Moving forward with research involving pregnant women: A critical role for wisdom from the field

Little, M. O., Lyerly, A. D. & Faden, R. R., Jan 1 2011, In : AJOB Primary Research. 2, 1, p. 15-17 3 p.

Research output: Contribution to journalArticle

Reframing the framework: Toward fair inclusion of pregnant women as participants in research

Lyerly, A. D., Little, M. O. & Faden, R. R., May 2011, In : American Journal of Bioethics. 11, 5, p. 50-52 3 p.

Research output: Contribution to journalArticle

2010

Alternatives to national average income data as eligibility criteria for international subsidies: A social justice perspective

Shebaya, S., Sutherland, A., Levine, O. & Faden, R. R., Dec 2010, In : Developing World Bioethics. 10, 3, p. 141-149 9 p.

Research output: Contribution to journalArticle

Bioethics and professionalism in popular television medical dramas

Czarny, M., Faden, R. R. & Sugarman, J., Apr 2010, In : Journal of Medical Ethics. 36, 4, p. 203-206 4 p.

Research output: Contribution to journalArticle

Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey

Lyerly, A. D., Steinhauser, K., Voils, C., Namey, E., Alexander, C., Bankowski, B., Cook-Deegan, R., Dodson, W. C., Gates, E., Jungheim, E. S., McGovern, P. G., Myers, E. R., Osborn, B., Schlaff, W., Sugarman, J., Tulsky, J. A., Walmer, D., Faden, R. R. & Wallach, E., Jan 15 2010, In : Fertility and sterility. 93, 2, p. 499-509 11 p.

Research output: Contribution to journalArticle

2009

Categorizing empirical research in bioethics: Why count the ways?

Sugarman, J., Kass, N. & Faden, R., Nov 24 2009, In : American Journal of Bioethics. 9, 6-7, p. 66-67 2 p.

Research output: Contribution to journalArticle

Pluripotent Stem Cell-Derived Gametes: Truth and (Potential) Consequences

Mathews, D. J., Donovan, P. J., Harris, J., Lovell-Badge, R., Savulescu, J. & Faden, R. R., Jul 2 2009, In : Cell Stem Cell. 5, 1, p. 11-14 4 p.

Research output: Contribution to journalArticle

Preface

McKhann, G. M. & Faden, R. R., 2009, In : Unknown Journal.

Research output: Contribution to journalArticle

Setting priorities for patient safety: Ethics, accountability, and public engagement

Pronovost, P. J. & Faden, R. R., Aug 26 2009, In : Journal of the American Medical Association. 302, 8, p. 890-891 2 p.

Research output: Contribution to journalArticle

The role of animal models in evaluating reasonable safety and efficacy for human trials of cell-based interventions for neurologic conditions

Regenberg, A., Mathews, D. J., Blass, D. M., Bok, H., Coyle, J. T., Duggan, P., Faden, R. R., Finkel, J., Gearhart, J. D., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., King, P., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G. & 11 others, Nelson, K. B., Rao, M., Siegel, A. W., Smith, K. D., Solter, D., Song, H., Sugarman, J., Vescovi, A., Young, W., Greely, H. T. & Traystman, R. J., Jan 2009, In : Journal of Cerebral Blood Flow and Metabolism. 29, 1, p. 1-9 9 p.

Research output: Contribution to journalArticle

Unintended changes in cognition, mood, and behavior arising from cell-based interventions for neurological conditions: Ethical challenges

Duggan, P. S., Siegel, A. W., Blass, D. M., Bok, H., Coyle, J. T., Faden, R. R., Finkel, J., Gearhart, J. D., Greely, H. T., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., King, P., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G. & 12 others, Nelson, K. B., Rao, M., Regenberg, A., Smith, K. D., Solter, D., Song, H., Sugarman, J., Traystman, R. J., Vescovi, A., Yanofski, J., Young, W. & Mathews, D. J., May 2009, In : American Journal of Bioethics. 9, 5, p. 31-36 6 p.

Research output: Contribution to journalArticle

2008

A critique of the 'Fetus as patient'

Lyerly, A. D., Little, M. O. & Faden, R. R., Jul 2008, In : American Journal of Bioethics. 8, 7, p. 42-44 3 p.

Research output: Contribution to journalArticle

Cell-based interventions for neurologic conditions: Ethical challenges for early human trials

Mathews, D. J., Sugarman, J., Bok, H., Blass, D. M., Coyle, J. T., Duggan, P., Finkel, J., Greely, H. T., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G., Nelson, K. B., Rao, M. & 9 others, Regenberg, A., Siegel, A. W., Smith, K. D., Solter, D., Song, H., Vescovi, A., Young, W., Gearhart, J. D. & Faden, R. R., Jul 22 2008, In : Neurology. 71, 4, p. 288-293 6 p.

Research output: Contribution to journalArticle

Gesundheitliche Ungleichheit und soziale Gerechtigkeit. Die moralischen Grundlagen von Public Health

Translated title of the contribution: Health inequities and social justice: ttthe moral foundations of public healthFaden, R. R. & Powers, M., Feb 1 2008, In : Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz. 51, 2, p. 151-157 7 p.

Research output: Contribution to journalArticle

2007

Access to health insurance: Experiences and attitudes of those with genetic versus non-genetic medical conditions

Kass, N. E., Medley, A. M., Natowicz, M. R., Hull, S. C., Faden, R. R., Plantinga, L. & Gostin, L. O., Apr 1 2007, In : American Journal of Medical Genetics, Part A. 143, 7, p. 707-716 10 p.

Research output: Contribution to journalArticle

Ethical and policy issues relating to progenitor-cell-based strategies for prevention of atherosclerosis

Liao, S. M., Goldschmidt, P. J., Sugarman, J., Bok, H., Brown, H., Alta Charo, R., Faden, R., Hare, J., Kahn, J., Kurtzberg, J., Manton, K. G., Moreno, J., Shanawani, H., Sulmasy, D. P., Taylor, H. & Zoloth, L., Nov 2007, In : Journal of Medical Ethics. 33, 11, p. 643-646 4 p.

Research output: Contribution to journalArticle

Response [3]

Lyerly, A. D. & Faden, R. R., Oct 26 2007, In : Science. 318, 5850, p. 566-568 3 p.

Research output: Contribution to journalArticle

2006

Factors that affect infertility patients' decisions about disposition of frozen embryos

Lyerly, A. D., Steinhauser, K., Namey, E., Tulsky, J. A., Cook-Deegan, R., Sugarman, J., Walmer, D., Faden, R. & Wallach, E., Jun 1 2006, In : Fertility and sterility. 85, 6, p. 1623-1630 8 p.

Research output: Contribution to journalArticle