Debra J Mathews

Associate Professor

19992018
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Research Output 1999 2018

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

Mitchell, P. B., Ziniel, S. I., Savage, S. K., Christensen, K. D., Weitzman, E. R., Green, R. C., Huntington, N. L., Mathews, D. J. & Holm, I. A., Jan 1 2018, (Accepted/In press) In : Journal of Empirical Research on Human Research Ethics.

Research output: Contribution to journalArticle

autonomy
Parents
Research
research results
parents

Free Will, Self-Governance and Neuroscience: An Overview

Carse, A., Bok, H. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Neuroethics.

Research output: Contribution to journalArticle

Personal Autonomy
Neurosciences
Brain
Research

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease

Stuttgen, K. M., Bollinger, J. M., Dvoskin, R. L., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J. H., Jul 2 2018, (Accepted/In press) In : Journal of Genetic Counseling. p. 1-10 10 p.

Research output: Contribution to journalArticle

Huntington Disease
Genetic Testing
Incidental Findings
Decision Making
Exome

The Therapeutic Misconception: An Examination of its Normative Assumptions and a Call for its Revision

Mathews, D. J. H., Fins, J. J. & Racine, E., Jan 1 2018, In : Cambridge Quarterly of Healthcare Ethics. 27, 1, p. 154-162 9 p.

Research output: Contribution to journalReview article

Therapeutic Misconception
Paternalism
paternalism
research practice
examination

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

Fiallos, K., Applegate, C., Mathews, D. J. H., Bollinger, J., Bergner, A. L. & James, C. A., May 1 2017, In : European Journal of Human Genetics. 25, 5, p. 530-537 8 p.

Research output: Contribution to journalArticle

Physicians
Genomics
Informed Consent
Research
Consensus