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Research Output 1989 2020

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2006

Confirming comprehension of informed consent as a protection of human subjects

Sugarman, J. & Paasche-Orlow, M., Aug 2006, In : Journal of General Internal Medicine. 21, 8, p. 898-899 2 p.

Research output: Contribution to journalArticle

Patient Rights
Informed Consent
Mental Competency

Cross-cultural validation of the hill-bone compliance to high blood pressure therapy scale in a South African, primary healthcare setting

Lambert, E. V., Steyn, K., Stender, S., Everage, N., Fourie, J. M. & Hill, M., 2006, In : Ethnicity and Disease. 16, 1, p. 286-291 6 p.

Research output: Contribution to journalArticle

Primary Health Care
Blood Pressure
Hypertension
Bone and Bones
Medication Adherence

Defining and addressing moral distress: tools for critical care nursing leaders.

Rushton, C. H., Apr 2006, In : AACN Advanced Critical Care. 17, 2, p. 161-168 8 p.

Research output: Contribution to journalArticle

Critical Care Nursing
Nurse Clinicians
Quality of Health Care
Critical Care
Patient Care

Disclosing conflicts of interest in clinical research: Views of institutional review boards, conflict of interest committees, and investigators

Weinfurt, K. P., Friedman, J. Y., Dinan, M. A., Allsbrook, J. S., Hall, M. A., Dhillon, J. K. & Sugarman, J., Sep 2006, In : Journal of Law, Medicine and Ethics. 34, 3, p. 581-591 11 p.

Research output: Contribution to journalArticle

Conflict of Interest
Research Ethics Committees
conflict of interest
Disclosure
Research Personnel

Donation after cardiac death: Ethical implications and implementation strategies

Rushton, C. H., Jul 2006, In : AACN Advanced Critical Care. 17, 3, p. 345-349 5 p.

Research output: Contribution to journalArticle

Program Development
Tissue and Organ Procurement
Terminal Care
Clinical Protocols
Tissue Donors

Ethical issues in evidence-based surgery

Burger, I., Sugarman, J. & Goodman, S. N., Feb 2006, In : The Surgical clinics of North America. 86, 1, p. 151-168 18 p.

Research output: Contribution to journalArticle

Ethics
Research
Evidence-Based Medicine
Uncertainty
Decision Making

Factors that affect infertility patients' decisions about disposition of frozen embryos

Lyerly, A. D., Steinhauser, K., Namey, E., Tulsky, J. A., Cook-Deegan, R., Sugarman, J., Walmer, D., Faden, R. R. & Wallach, E. E., Jun 2006, In : Fertility and Sterility. 85, 6, p. 1623-1630 8 p.

Research output: Contribution to journalArticle

Embryo Disposition
Infertility
Embryonic Structures
Decision Making
Interviews

Integrity in international stem cell research collaborations

Mathews, D. J., Donovan, P., Harris, J., Lovell-Badge, R., Savulescu, J. & Faden, R. R., Aug 18 2006, In : Science. 313, 5789, p. 921-922 2 p.

Research output: Contribution to journalArticle

Stem Cell Research

Interdisciplinary interventions to improve pediatric palliative care and reduce health care professional suffering

Rushton, C. H., Reder, E., Hall, B., Comello, K., Sellers, D. E. & Hutton, N., Aug 2006, In : Journal of Palliative Medicine. 9, 4, p. 922-933 12 p.

Research output: Contribution to journalArticle

Palliative Care
Psychological Stress
Pediatrics
Delivery of Health Care
Bereavement

Measuring trust in medical researchers

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J. & Weinfurt, K., Nov 2006, In : Medical Care. 44, 11, p. 1048-1053 6 p.

Research output: Contribution to journalArticle

Research Personnel
medical research
Biomedical Research
Statistical Factor Analysis
selection procedure
Advance Care Planning
Duchenne Muscular Dystrophy
Nuclear Family
Walking
Parents

Policies of academic medical centers for disclosing financial conflicts of interest to potential research participants

Weinfurt, K. P., Dinan, M. A., Allsbrook, J. S., Friedman, J. Y., Hall, M. A., Schulman, K. A. & Sugarman, J., Feb 2006, In : Academic Medicine. 81, 2, p. 113-118 6 p.

Research output: Contribution to journalArticle

Conflict of Interest
conflict of interest
Disclosure
Research
Research Ethics Committees

Rates, timing and causes of neonatal deaths in rural India: Implications for neonatal health programmes

Baqui, A., Darmstadt, G. L., Williams, E. K., Kumar, V., Kiran, T. U., Panwar, D., Srivastava, V. K., Ahuja, R., Black, R. E. & Santosham, M., 2006, In : Bulletin of the World Health Organization. 84, 9, p. 706-713 8 p.

Research output: Contribution to journalArticle

Stillbirth
India
Cause of Death
Parturition
Sepsis

Risk in drug trials

Sugarman, J. & Levine, C., Dec 23 2006, In : The Lancet. 368, 9554, p. 2205 1 p.

Research output: Contribution to journalArticle

Research Design
Monoclonal Antibodies
Clinical Trials
Pharmaceutical Preparations
Mass Media
Indonesia
Family Planning Services
mass media
family planning

The inescapable relevance of bioethics for the practicing clinician

Carrese, J. & Sugarman, J., Dec 2006, In : Chest. 130, 6, p. 1864-1872 9 p.

Research output: Contribution to journalArticle

Clinical Ethics
Research Ethics
Medical Ethics
Bioethics

The moral nature of patient-centeredness: Is it "just the right thing to do"?

Duggan, P. S., Geller, G., Cooper, L. A. & Beach, M. C., Aug 2006, In : Patient Education and Counseling. 62, 2, p. 271-276 6 p.

Research output: Contribution to journalArticle

Patient-Centered Care
Ethical Theory
Quality of Health Care
Decision Making
Patient Care

Variability in the costs of institutional review board oversight

Byrne, M. M., Speckman, J., Getz, K. & Sugarman, J., Aug 2006, In : Academic Medicine. 81, 8, p. 708-712 5 p.

Research output: Contribution to journalArticle

Research Ethics Committees
Costs and Cost Analysis
costs
economy
utilization

Views of potential research participants on financial conflicts of interest: Barriers and opportunities for effective disclosure

Weinfurt, K. P., Friedman, J. Y., Allsbrook, J. S., Dinan, M. A., Hall, M. A. & Sugarman, J., Sep 2006, In : Journal of General Internal Medicine. 21, 9, p. 901-906 6 p.

Research output: Contribution to journalArticle

Conflict of Interest
Disclosure
Focus Groups
Research
Parents
2005

A framework for integrated pediatric palliative care: Being with dying

Rushton, C. H., Oct 2005, In : Journal of Pediatric Nursing. 20, 5, p. 311-325 15 p.

Research output: Contribution to journalArticle

Palliative Care
Pediatrics
Uncertainty
Parents
Foster Home Care
Complementary Therapies
Medicine
Precision Medicine
United States Public Health Service
Biological Science Disciplines

Consensus Statement: Collaborative Clinical Research on End-of-Life Care in Pediatric Oncology

Stutzer, C. A., Drew, D., Himelstein, B. P., Hinds, P. S., LaFond, D. A., Nuss, S. L. & Rushton, C. H., May 2005, In : Seminars in Oncology Nursing. 21, 2, p. 142-144 3 p.

Research output: Contribution to journalArticle

Terminal Care
Pediatrics
Research

Critique 1: Collaborative Clinical Research on End-of-Life Care in Pediatric Oncology

Himelstein, B. P. & Rushton, C. H., May 2005, In : Seminars in Oncology Nursing. 21, 2, p. 134-141 8 p.

Research output: Contribution to journalArticle

Terminal Care
Pediatrics
Research

Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care?

Beach, M. C., Sugarman, J., Thornton, R. J., Arbelaez, J. J., Duggan, P. S. & Cooper, L. A., Jul 2005, In : Annals of Family Medicine. 3, 4, p. 331-338 8 p.

Research output: Contribution to journalArticle

Preventive Medicine
Ethnic Groups
Health Care Surveys
Patient Satisfaction
Logistic Models

Ethical goals of community consultation in research

Dickert, N. & Sugarman, J., Jul 2005, In : American Journal of Public Health. 95, 7, p. 1123-1127 5 p.

Research output: Contribution to journalArticle

Referral and Consultation
Research
Research Ethics Committees
Research Personnel
Research Subjects

Evaluating the quality of informed consent

Sugarman, J., Lavori, P. W., Boeger, M., Cain, C., Edson, R., Morrison, V. & Yeh, S. S., 2005, In : Clinical Trials. 2, 1, p. 34-41 8 p.

Research output: Contribution to journalArticle

Informed Consent
Research
Therapeutic Misconception
Telephone

Geneticists' views on science policy formation and public outreach

Mathews, D. J., Kalfoglou, A. & Hudson, K., Aug 30 2005, In : American Journal of Medical Genetics. 137 A, 2, p. 161-169 9 p.

Research output: Contribution to journalArticle

Public Policy
Genetic Research
Ethicists
Aptitude
Ethics

How do obstetric providers discuss referrals for prenatal genetic counseling?

Bernhardt, B. A., Haunstetter, C. M., Roter, D. & Geller, G., Apr 2005, In : Journal of Genetic Counseling. 14, 2, p. 109-117 9 p.

Research output: Contribution to journalArticle

Genetic Counseling
Obstetrics
Referral and Consultation
Pregnant Women
Nurse Midwives

Moral issues of human-non-human primate neural grafting

Greene, M., Schill, K., Takahashi, S., Bateman-House, A., Beauchamp, T., Bok, H., Cheney, D., Coyle, J., Deacon, T., Dennett, D., Donovan, P., Flanagan, O., Goldman, S., Greely, H., Martin, L. J., Miller, E., Mueller, D., Siegel, A., Solter, D., Gearhart, J. & 2 others, McKhann, G. & Faden, R. R., Jul 15 2005, In : Science. 309, 5733, p. 385-386 2 p.

Research output: Contribution to journalArticle

Transplantation Chimera
Moral Obligations
Research Ethics
Mental Processes
Heterologous Transplantation

Opinions about new reproductive genetic technologies: Hopes and fears for our genetic future

Kalfoglou, A. L., Doksum, T., Bernhardt, B., Geller, G., LeRoy, L., Mathews, D. J., Evans, J. H., Doukas, D. J., Reame, N., Scott, J. & Hudson, K., Jun 2005, In : Fertility and Sterility. 83, 6, p. 1612-1621 10 p.

Research output: Contribution to journalArticle

Hope
Reproductive Techniques
Fear
Focus Groups
Sex Preselection

Promoting informed choice: Evaluating a decision-making tool for family planning clients and providers in Mexico

Kim, Y-MI., Kols, A., Martin, A., Silva, D., Rinehart, W., Prammawat, S., Johnson, S. & Church, K., Dec 2005, In : International Family Planning Perspectives. 31, 4, p. 162-171 10 p.

Research output: Contribution to journalArticle

family planning
Family Planning Services
Mexico
Decision Making
decision making

Resisting the tide of professionalization: Valuing diversity in bioethics

Regenberg, A. C. & Mathews, D. J., Sep 2005, In : American Journal of Bioethics. 5, 5, p. 44-45 2 p.

Research output: Contribution to journalArticle

tide
bioethics

Scientists' and science writers' experiences reporting genetic discoveries: Toward an ethic of trust in science journalism

Geller, G., Bernhardt, B. A., Gardner, M., Rodgers, J. & Holtzman, N. A., Mar 2005, In : Genetics in Medicine. 7, 3, p. 198-205 8 p.

Research output: Contribution to journalArticle

Journalism
Ethics
Interviews
Eugenics

Sequence analysis: Responsiveness of doctors to patient cues during family planning consultations in Mexico

Kim, Y-MI., Kols, A., Prammawat, S. & Rinehart, W., Jul 2005, In : Patient Education and Counseling. 58, 1, p. 114-117 4 p.

Research output: Contribution to journalArticle

Patient Participation
Physician-Patient Relations
Clinical Competence
Family Planning Services
Mexico

The cost of institutional review boards in academic medical centers [7]

Sugarman, J., Getz, K., Speckman, J. L., Byrne, M. M., Gerson, J. & Emanuel, E. J., Apr 28 2005, In : New England Journal of Medicine. 352, 17, p. 1825-1827 3 p.

Research output: Contribution to journalArticle

Research Ethics Committees
Costs and Cost Analysis

The costs of institutional review boards [3] (multiple letters)

Dickler, H. B., Korn, D., Bhat, S., Hegde, T. T., Sugarman, J. & Emanuel, E. J., Jul 21 2005, In : New England Journal of Medicine. 353, 3, p. 315-317 3 p.

Research output: Contribution to journalArticle

Government Regulation
Accreditation
Research Ethics Committees
Developing Countries
Biomedical Research
Placenta
Empirical Research
Research
Biomedical Research
Tissue

The quality of media reports on discoveries related to human genetic diseases

Holtzman, N. A., Bernhardt, B. A., Mountcastle-Shah, E., Rodgers, J. E., Tambor, E. & Geller, G., Aug 2005, In : Community Genetics. 8, 3, p. 133-144 12 p.

Research output: Contribution to journalArticle

Inborn Genetic Diseases
Newspapers
Television
Medical Genetics
Expert Testimony

Untying the Gordian knot: Policies, practices, and ethical issues related to banking of umbilical cord blood

Kurtzberg, J., Lyerly, A. D. & Sugarman, J., Oct 2005, In : Journal of Clinical Investigation. 115, 10, p. 2592-2597 6 p.

Research output: Contribution to journalArticle

Fetal Blood
Ethics
Blood Banks
Hematopoietic Stem Cells
Transplantation
2004

A response to commentators on "the limitations of 'vulnerability' as a protection for human research participants"

Levine, C., Faden, R. R., Grady, C., Hammerschmidt, D., Eckenwiler, L. & Sugarman, J., 2004, In : American Journal of Bioethics. 4, 3

Research output: Contribution to journalArticle

vulnerability
Research

Bringing end-of-life care out of the shadows.

Rushton, C. H., Spencer, K. L. & Johanson, W., Nov 2004, In : Holistic Nursing Practice. 18, 6, p. 313-317 5 p.

Research output: Contribution to journalArticle

Terminal Care
Nursing
Therapeutic Human Experimentation
Research Ethics Committees
Ice
Informed Consent
Randomized Controlled Trials

End-of-life care in the pediatric intensive care unit: Research review and recommendations

Burns, J. P. & Rushton, C. H., Jul 2004, In : Critical Care Clinics. 20, 3, p. 467-485 19 p.

Research output: Contribution to journalArticle

Bereavement
Pediatric Intensive Care Units
Terminal Care
Palliative Care
Critical Care

Ethical challenges in international HIV prevention research

MacQueen, K. M., Shapiro, K., Karim, Q. A. & Sugarman, J., 2004, In : Accountability in Research. 11, 1, p. 49-61 13 p.

Research output: Contribution to journalArticle

moral philosophy
public health
dialogue
decision making
planning

Ethical issues in identifying and recruiting participants for familial genetic research

Beskow, L. M., Botkin, J. R., Daly, M., Juengst, E. T., Lehmann, L. S., Merz, J. F., Pentz, R., Press, N. A., Ross, L. F., Sugarman, J., Susswein, L. R., Terry, S. F., Austin, M. A. & Burke, W., Nov 1 2004, In : American Journal of Medical Genetics. 130 A, 4, p. 424-431 8 p.

Research output: Contribution to journalArticle

Genetic Research
Ethics
Research Personnel
Bioethics
Empirical Research

Ethics and palliative care in pediatrics

Rushton, C. H., Apr 2004, In : American Journal of Nursing. 104, 4, p. 54-64 11 p.

Research output: Contribution to journalArticle

Hospice and Palliative Care Nursing
Child Care
Palliative Care
Ethics
Pediatrics

Ethics and research assessing the relative roles of genes and the environment

DeCamp, M. & Sugarman, J., 2004, In : Accountability in Research. 11, 3-4, p. 161-182 22 p.

Research output: Contribution to journalArticle

moral philosophy
Disease
genetic research
research results
research planning

Ethics in behavioral genetics research

DeCamp, M. & Sugarman, J., 2004, In : Accountability in Research. 11, 1, p. 27-47 21 p.

Research output: Contribution to journalArticle

genetic research
moral philosophy
homosexuality
mental illness
research method

Ethics in population-based genetic research

DeCamp, M. & Sugarman, J., 2004, In : Accountability in Research. 11, 1, p. 1-26 26 p.

Research output: Contribution to journalArticle

genetic research
moral philosophy
epidemiology
research results
research planning
Physician's Role
Medical Ethics
Professional Practice
Social Justice
Medical Education