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2010

Learning that leads to action impact and characteristics of a professional education approach to improve the care of critically ill children and their families

Solomon, M. Z., Browning, D. M., Dokken, D. L., Merriman, M. P. & Rushton, C. H., Apr 2010, In : Archives of Pediatrics and Adolescent Medicine. 164, 4, p. 315-322 8 p.

Research output: Contribution to journalArticle

Professional Education
Palliative Care
Critical Illness
Learning
Pediatrics

Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Translated title of the contribution: Life-threatening neuromuscular disorders: Interest in palliative care for children and their familiesRushton, C. H. & Geller, G., Dec 2010, In : Medecine Palliative. 9, 6, p. 283-290 8 p.

Research output: Contribution to journalArticle

Hope
Palliative Care
Pediatrics
Neuromuscular Diseases
Terminal Care

Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Translated title of the contribution: Life-threatening neuromuscular disorders: Interest in palliative care for children and their familiesRushton, C. H. & Geller, G., Dec 2010, In : Medecine Palliative. 9, 6

Research output: Contribution to journalArticle

Hope
Palliative Care
Pediatrics
Neuromuscular Diseases
Terminal Care

Oversight of financial conflicts of interest in commercially sponsored research in academic and nonacademic settings

Weinfurt, K. P., Hall, M. A., Chantelle Hardy, N., Friedman, J. Y., Schulman, K. A. & Sugarman, J., May 2010, In : Journal of General Internal Medicine. 25, 5, p. 460-464 5 p.

Research output: Contribution to journalArticle

Conflict of Interest
Outpatients
Research
Phase III Clinical Trials
New England

Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research

Fortune-Greeley, A. K., Hardy, N. C., Lin, L., Friedman, J. Y., Lawlor, J. S., Muhlbaier, L. H., Hall, M. A., Schulman, K. A., Sugarman, J. & Weinfurt, K. P., Mar 2010, In : Circulation: Cardiovascular Quality and Outcomes. 3, 2, p. 151-158 8 p.

Research output: Contribution to journalArticle

Confidentiality
Cardiology
Informed Consent
Clinical Trials
Consent Forms
Medical Oncology
Prostatic Neoplasms
Interviews
Breast Neoplasms
Triage

Seeking assent and respecting dissent in dementia research

Black, B. E., Rabins, P. V., Sugarman, J. & Karlawish, J. H., Jan 2010, In : American Journal of Geriatric Psychiatry. 18, 1, p. 77-85 9 p.

Research output: Contribution to journalArticle

Dissent and Disputes
Dementia
Research
Aptitude
Research Ethics

The 2010 international year of the nurse initiative

Beck, D. M., Dossey, B. & Rushton, C. H., Apr 2010, In : American Journal of Nursing. 110, 4, p. 11 1 p.

Research output: Contribution to journalArticle

Interinstitutional Relations
International Nurses
Nursing Societies
International Cooperation
Nurse's Role

The circulatory-respiratory determination of death in organ donation

Bernat, J. L., Capron, A. M., Bleck, T. P., Blosser, S., Bratton, S. L., Childress, J. F., Devita, M. A., Fulda, G. J., Gries, C. J., Mathur, M., Nakagawa, T., Rushton, C. H., Shemie, S. D. & White, D. B., Mar 2010, In : Critical Care Medicine. 38, 3, p. 963-970 8 p.

Research output: Contribution to journalArticle

Tissue and Organ Procurement
Extracorporeal Membrane Oxygenation
Tissue Donors
Brain
Physicians

Toward definitive trials and improved outcomes of cardiac arrest

Weisfeldt, M., Sugarman, J. & Bandeen Roche, K. J., Apr 2010, In : Circulation. 121, 14, p. 1586-1588 3 p.

Research output: Contribution to journalArticle

Induced Hypothermia
Cost of Illness
Unconsciousness
Blood Flow Velocity
Cardiopulmonary Resuscitation

Towards client-centered counseling: Development and testing of the WHO Decision-Making Tool

Johnson, S. L., Kim, Y-MI. & Church, K., Dec 2010, In : Patient Education and Counseling. 81, 3, p. 355-361 7 p.

Research output: Contribution to journalArticle

Counseling
Decision Making
Family Planning Services
Indonesia
Mexico

What keeps you up at night? Genetics professionals' distressing experiences in patient care

Bernhardt, B. A., Silver, R., Rushton, C. H., Micco, E. & Geller, G., May 2010, In : Genetics in Medicine. 12, 5, p. 289-297 9 p.

Research output: Contribution to journalArticle

Patient Care
Emotions
Nurses
Genetic Services
Mindfulness
2009

An intervention to improve cancer patients' understanding of early-phase clinical trials

Kass, N. E., Sugarman, J., Medley, A. M., Fogarty, L. A., Taylor, H., Daugherty, C. K., Emerson, M. R., Goodman, S. N., Hlubocky, F. J., Hurwitz, H. I., Carducci, M. A. & Goodwin-Landher, A., May 2009, In : IRB Ethics and Human Research. 31, 3, p. 1-8 8 p.

Research output: Contribution to journalArticle

Computer-Assisted Instruction
Research Ethics
Social Perception
time factor
Pamphlets

Ascertaining causes of neonatal deaths using verbal autopsy: Current methods and challenges

Thatte, N., Kalter, H. D., Baqui, A., Williams, E. M. & Darmstadt, G. L., 2009, In : Journal of perinatology : official journal of the California Perinatal Association. 29, 3, p. 187-194 8 p.

Research output: Contribution to journalArticle

Cause of Death
Autopsy
Infant, Newborn, Diseases
Interviews
Physicians
Critical Care
Fear
Decision Making
Anxiety
Communication

A "two cultures" phrasebook

Mathews, D. J., Regenberg, A. & Duggan, P., 2009, In : Unknown Journal. p. 1-12 12 p.

Research output: Contribution to journalArticle

ethics
brain
bioethics
project
programme

Categorizing empirical research in bioethics: Why count the ways?

Sugarman, J., Kass, N. E. & Faden, R. R., 2009, In : American Journal of Bioethics. 9, 6-7, p. 66-67 2 p.

Research output: Contribution to journalArticle

Bioethical Issues
Ethical Theory
Ethical Analysis
Medical Ethics
Bioethics

Community hospital oversight of clinical investigators' financial relationships

Hall, M. A., Weinfurt, K. P., Lawlor, J. S., Friedman, J. Y., Schulman, K. A. & Sugarman, J., Jan 2009, In : IRB Ethics and Human Research. 31, 1, p. 7-13 7 p.

Research output: Contribution to journalArticle

research personnel
research ethics
conflict of interest
community

Compassionate silence in the patient-clinician encounter: A contemplative approach

Back, A. L., Bauer-Wu, S. M., Rushton, C. H. & Halifax, J., Dec 1 2009, In : Journal of Palliative Medicine. 12, 12, p. 1113-1117 5 p.

Research output: Contribution to journalArticle

Communication
Atmosphere

Disclosure of financial relationships to participants in clinical research

Weinfurt, K. P., Hall, M. A., King, N. M. P., Friedman, J. Y., Schulman, K. A. & Sugarman, J., Aug 27 2009, In : New England Journal of Medicine. 361, 9

Research output: Contribution to journalArticle

Disclosure
Research
Research Personnel

Distress and burnout among genetic service providers

Bernhardt, B. A., Rushton, C. H., Carrese, J., Pyeritz, R. E., Kolodner, K. & Geller, G., Jul 2009, In : Genetics in Medicine. 11, 7, p. 527-535 9 p.

Research output: Contribution to journalArticle

Genetic Services
Professional Burnout
Nurses
Patient Care
Counselors

Effectiveness of home-based management of newborn infections by community health workers in rural Bangladesh

Baqui, A., Arifeen, S. E., Williams, E. K., Ahmed, S., Mannan, I., Rahman, S. M., Begum, N., Seraji, H. R., Winch, P. J., Santosham, M., Black, R. E. & Darmstadt, G. L., Apr 2009, In : Pediatric Infectious Disease Journal. 28, 4, p. 304-310 7 p.

Research output: Contribution to journalArticle

Bangladesh
Newborn Infant
Infection
Confidence Intervals
Therapeutics

Effect of timing of first postnatal care home visit on neonatal mortality in Bangladesh: A observational cohort study

Baqui, A., Ahmed, S., El Arifeen, S., Darmstadt, G. L., Rosecrans, A. M., Mannan, I., Rahman, S. M., Begum, N., Mahmud, A. B. A., Seraji, H. R., Williams, E. K., Winch, P. J., Santosham, M. & Black, R. E., Aug 22 2009, In : BMJ (Online). 339, 7718, p. 445-448 4 p.

Research output: Contribution to journalArticle

Postnatal Care
House Calls
Bangladesh
Infant Mortality
Observational Studies

Ethical discernment and action: The art of pause

Rushton, C. H., Jan 2009, In : AACN Advanced Critical Care. 20, 1, p. 108-111 4 p.

Research output: Contribution to journalArticle

Group Processes
Self Efficacy
Art
Ethics

Impact of a contemplative end-of-life training program: Being with dying

Rushton, C. H., Sellers, D. E., Heller, K. S., Spring, B., Dossey, B. M. & Halifax, J., Dec 2009, In : Palliative & supportive care. 7, 4, p. 405-414 10 p.

Research output: Contribution to journalArticle

Education
Grief
Caregivers
Emotions
Interviews

Is the enrollment of racial and ethnic minorities in research in the emergency setting equitable?

Sugarman, J., Sitlani, C., Andrusiek, D., Aufderheide, T., Bulger, E. M., Davis, D. P., Hoyt, D. B., Idris, A., Kerby, J. D., Powell, J., Schmidt, T., Slutsky, A. S., Sopko, G., Stephens, S., Williams, C. & Nichol, G., Jun 2009, In : Resuscitation. 80, 6, p. 644-649 6 p.

Research output: Contribution to journalArticle

Emergencies
Blood Pressure
Registries
Odds Ratio
Informed Consent

Justified use of painful stimuli in the coma examination: A neurologic and ethical rationale

Williams, M. A. & Rushton, C. H., Jun 2009, In : Neurocritical Care. 10, 3, p. 408-413 6 p.

Research output: Contribution to journalArticle

Neurologic Examination
Coma
Nervous System
Ethics
Delivery of Health Care

Medicine on the fringe: Stem cell-based interventions in advance of evidence

Regenberg, A. C., Hutchinson, L. A., Schanker, B. & Mathews, D. J., Sep 2009, In : Stem Cells. 27, 9, p. 2312-2319 8 p.

Research output: Contribution to journalArticle

Stem Cells
Medicine
Clinical Trials
Controlled Clinical Trials
Patient Education

Of mice and men: Skin cells, stem cells and ethical uncertainties

Sugarman, J. & Mathews, D. J., Nov 2009, In : Regenerative Medicine. 4, 6, p. 791 1 p.

Research output: Contribution to journalArticle

Mice (computer peripherals)
Induced Pluripotent Stem Cells
Cell Transplantation
Stem cells
Uncertainty

Pluripotent Stem Cell-Derived Gametes: Truth and (Potential) Consequences

Mathews, D. J., Donovan, P. J., Harris, J., Lovell-Badge, R., Savulescu, J. & Faden, R. R., Jul 2 2009, In : Cell Stem Cell. 5, 1, p. 11-14 4 p.

Research output: Contribution to journalArticle

Pluripotent Stem Cells
Germ Cells
Ethics
Eggs
Spermatozoa

Public perspectives on informed consent for biobanking

Murphy, J., Scott, J., Kaufman, D., Geller, G., LeRoy, L. & Hudson, K., Dec 1 2009, In : American Journal of Public Health. 99, 12, p. 2128-2134 7 p.

Research output: Contribution to journalArticle

Focus Groups
Informed Consent
Health
National Institutes of Health (U.S.)
Research

Science communication reconsidered

Bubela, T., Nisbet, M. C., Borchelt, R., Brunger, F., Critchley, C., Einsiedel, E., Geller, G., Gupta, A., Hampel, J., Hyde-Lay, R., Jandciu, E. W., Jones, S. A., Kolopack, P., Lane, S., Lougheed, T., Nerlich, B., Ogbogu, U., O'Riordan, K., Ouellette, C., Spear, M. & 4 others, Strauss, S., Thavaratnam, T., Willemse, L. & Caulfield, T., Jun 2009, In : Nature Biotechnology. 27, 6, p. 514-518 5 p.

Research output: Contribution to journalArticle

Communication
Industry
Education
Research

Scientific and ethical issues related to deep brain stimulation for disorders of mood, behavior, and thought

Rabins, P. V., Appleby, B. S., Brandt, J., DeLong, M. R., Dunn, L. B., Gabriëls, L., Greenberg, B. D., Haber, S. N., Holtzheimer, P. E., Mari, Z., Mayberg, H. S., McCann, E., Mink, S. P., Rasmussen, S., Schlaepfer, T. E., Vawter, D. E., Vitek, J. L., Walkup, J. & Mathews, D. J., Sep 2009, In : Archives of General Psychiatry. 66, 9, p. 931-937 7 p.

Research output: Contribution to journalArticle

Deep Brain Stimulation
Brain Diseases
Ethics
Consensus
Clinical Trials

The role and impact of personal faith and religion among genetic service providers

Geller, G., Micco, E., Silver, R. J., Kolodner, K. E. N. & Bernhardt, B. A., Feb 15 2009, In : American Journal of Medical Genetics, Part A. 151, 1, p. 31-40 10 p.

Research output: Contribution to journalArticle

Genetic Services
Religion
Nurses
Confidentiality
Interviews

The role of animal models in evaluating reasonable safety and efficacy for human trials of cell-based interventions for neurologic conditions

Regenberg, A., Mathews, D. J., Blass, D. M., Bok, H., Coyle, J. T., Duggan, P., Faden, R. R., Finkel, J., Gearhart, J. D., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., King, P., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G. & 11 others, Nelson, K. B., Rao, M., Siegel, A. W., Smith, K. D., Solter, D., Song, H., Sugarman, J., Vescovi, A., Young, W., Greely, H. T. & Traystman, R. J., Jan 2009, In : Journal of Cerebral Blood Flow and Metabolism. 29, 1, p. 1-9 9 p.

Research output: Contribution to journalArticle

Nervous System
Animal Models
Safety
Regenerative Medicine
Lenses

Transforming the culture of biomedical research from compliance to trustworthiness: Insights from nonmedical sectors

Yarborough, M., Fryer-Edwards, K., Geller, G. & Sharp, R. R., Apr 2009, In : Academic Medicine. 84, 4, p. 472-477 6 p.

Research output: Contribution to journalArticle

trustworthiness
Biomedical Research
health care
Delivery of Health Care
leader
Survivors
Primary Health Care
Survival Rate
Breast Neoplasms
Neoplasms

Unintended changes in cognition, mood, and behavior arising from cell-based interventions for neurological conditions: Ethical challenges

Duggan, P. S., Siegel, A. W., Blass, D. M., Bok, H., Coyle, J. T., Faden, R. R., Finkel, J., Gearhart, J. D., Greely, H. T., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., King, P., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G. & 12 others, Nelson, K. B., Rao, M., Regenberg, A., Smith, K. D., Solter, D., Song, H., Sugarman, J., Traystman, R. J., Vescovi, A., Yanofski, J., Young, W. & Mathews, D. J., May 2009, In : American Journal of Bioethics. 9, 5, p. 31-36 6 p.

Research output: Contribution to journalArticle

Cognition
Ethical Analysis
Informed Consent
Self Concept
Central Nervous System
2008

Birth interval and risk of stillbirth or neonatal death: Findings from rural North India

Williams, E. K., Hossain, M. B., Sharma, R. K., Kumar, V., Pandey, C. M. & Baqui, A., Oct 2008, In : Journal of Tropical Pediatrics. 54, 5, p. 321-327 7 p.

Research output: Contribution to journalArticle

Birth Intervals
Stillbirth
India
Odds Ratio
Confidence Intervals

Cell-based interventions for neurologic conditions: Ethical challenges for early human trials

Mathews, D. J., Sugarman, J., Bok, H., Blass, D. M., Coyle, J. T., Duggan, P., Finkel, J., Greely, H. T., Hillis-Trupe, A., Hoke, A., Johnson, R., Johnston, M. V., Kahn, J., Kerr, D., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G., Nelson, K. B., Rao, M. & 9 others, Regenberg, A., Siegel, A. W., Smith, K. D., Solter, D., Song, H., Vescovi, A., Young, W., Gearhart, J. D. & Faden, R. R., Jul 22 2008, In : Neurology. 71, 4, p. 288-293 6 p.

Research output: Contribution to journalArticle

Ethics
Nervous System
Stem Cell Research
Institutional Practice
Research

Children's and parents' perspectives on open-label use of placebos in the treatment of ADHD

Sandler, A., Glesne, C. & Geller, G., Jan 2008, In : Child: Care, Health and Development. 34, 1, p. 111-120 10 p.

Research output: Contribution to journalArticle

Attention Deficit Disorder with Hyperactivity
Parents
Placebos
Therapeutics
Disclosure

County lung cancer mortality: A decision tree model for control and prevention

Kanarek, N. F., Fitzek, B., Su, S. C., Brower, M. & Jia, H., Jul 2008, In : Journal of Public Health Management and Practice. 14, 4

Research output: Contribution to journalArticle

Decision Trees
Lung Neoplasms
Poverty
Mortality
Smoking

Differentials in neonatal mortality in two adjacent rural areas of Bangladesh: Lessons for neonatal health interventions

Baqui, A., Arifeen, S. E., Darmstadt, G. L., Ahmed, S., Seraji, H. R., Winch, P. J., Williams, E. K., Santosham, M. & Black, R. E., 2008, In : Global Public Health. 3, 4, p. 366-382 17 p.

Research output: Contribution to journalArticle

Bangladesh
Infant Mortality
Newborn Infant
Emergency Medical Services
Obstetrics

Effect of community-based newborn-care intervention package implemented through two service-delivery strategies in Sylhet district, Bangladesh: a cluster-randomised controlled trial

Baqui, A., El-Arifeen, S., Darmstadt, G. L., Ahmed, S., Williams, E. K., Seraji, H. R., Mannan, I., Rahman, S. M., Shah, R., Saha, S. K., Syed, U., Winch, P. J., Lefevre, A. E., Santosham, M. & Black, R. E., 2008, In : The Lancet. 371, 9628, p. 1936-1944 9 p.

Research output: Contribution to journalArticle

Bangladesh
Infant Mortality
Randomized Controlled Trials
Home Care Services
Newborn Infant

Effects of disclosing financial interests on attitudes toward clinical research

Weinfurt, K. P., Hall, M. A., Dinan, M. A., DePuy, V., Friedman, J. Y., Allsbrook, J. S. & Sugarman, J., Jun 2008, In : Journal of General Internal Medicine. 23, 6, p. 860-866 7 p.

Research output: Contribution to journalArticle

Disclosure
Research
Research Personnel
Clinical Trials
Surveys and Questionnaires

Effects of disclosing financial interests on participation in medical research: A randomized vignette trial

Weinfurt, K. P., Hall, M. A., Friedman, J. Y., Hardy, N. C., Fortune-Greeley, A. K., Lawlor, J. S., Allsbrook, J. S., Lin, L., Schulman, K. A. & Sugarman, J., Oct 2008, In : American Heart Journal. 156, 4, p. 689-697 9 p.

Research output: Contribution to journalArticle

Disclosure
Biomedical Research
Research Personnel
Research
Consent Forms

Enhancing communication among data monitoring committees and institutional review boards

Taylor, H., Chaisson, L. & Sugarman, J., 2008, In : Clinical Trials. 5, 3, p. 277-282 6 p.

Research output: Contribution to journalArticle

Clinical Trials Data Monitoring Committees
Research Ethics Committees
Communication
Research
Research Ethics

Ethical and practical issues associated with aggregating databases

Karp, D. R., Carlin, S., Cook-Deegan, R., Ford, D. E., Geller, G., Glass, D. N., Greely, H., Guthridge, J., Kahn, J., Kaslow, R., Kraft, C., MacQueen, K., Malin, B., Scheuerman, R. H. & Sugarman, J., Sep 2008, In : PLoS Medicine. 5, 9, p. 1333-1337 5 p., e190.

Research output: Contribution to journalArticle

Genetic Databases
Access to Information
Research Ethics Committees
Population Genetics
Genetic Predisposition to Disease

Ethical considerations for short-term experiences by trainees in global health

Crump, J. A. & Sugarman, J., Sep 24 2008, In : Journal of the American Medical Association. 300, 12, p. 1456-1458 3 p.

Research output: Contribution to journalArticle

International Educational Exchange
Internationality
Internship and Residency
Medical Education
Health Education

Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion

Kaufman, D., Geller, G., Leroy, L., Murphy, J., Scott, J. & Hudson, K., Feb 15 2008, In : American Journal of Medical Genetics, Part A. 148, 1, p. 31-39 9 p.

Research output: Contribution to journalArticle

Genetic Research
Public Opinion
Cohort Studies
Focus Groups
Privacy