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Research Output 1989 2019

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2019

Addressing guideline and policy changes during pragmatic clinical trials

Curtis, L. H., Dember, L. M., Vazquez, M. A., Murray, D., DeBar, L., Staman, K. L., Septimus, E., Mor, V., Volandes, A., Wells, B. L., Huang, S. S., Green, B. B., Coronado, G., Meyers, C. M., Tuzzio, L., Hernandez, A. F. & Sugarman, J., Aug 1 2019, In : Clinical trials (London, England). 16, 4, p. 431-437 7 p.

Research output: Contribution to journalArticle

Pragmatic Clinical Trials
Public Health
Guidelines
Practice Guidelines
Opioid Analgesics

A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context

Tilburt, J., Yost, K. J., Lenz, H. J., Zúñiga, M. L., O'Byrne, T., Branda, M. E., Leppin, A. L., Kimball, B., Fernandez, C., Jatoi, A., Barwise, A., Kumbamu, A., Montori, V., Koenig, B. A., Geller, G., Larson, S. M. & Roter, D., Jan 1 2019, In : Oncologist.

Research output: Contribution to journalArticle

Complementary Therapies
Population Characteristics

Comparing the effectiveness of a blended learning approach with a conventional learning approach for basic emergency obstetric and newborn care training in Ethiopia

Yigzaw, M., Tebekaw, Y., Kim, Y-MI., Kols, A., Ayalew, F. & Eyassu, G., Nov 1 2019, In : Midwifery. 78, p. 42-49 8 p.

Research output: Contribution to journalArticle

Ethiopia
Obstetrics
Emergencies
Learning
Newborn Infant

Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants

Bollinger, J. M., Eno, A., Seaman, S., Brown, D., Van Pilsum Rasmussen, S. E., Tobian, A. A., Segev, D., Durand, C. & Sugarman, J., Jan 1 2019, In : Clinical Transplantation. e13617.

Research output: Contribution to journalArticle

HIV
Transplants
Transplantation
Research
Fatigue

Ethical Framework for Including Research Biopsies in Oncology Clinical Trials: American Society of Clinical Oncology Research Statement

Levit, L. A., Peppercorn, J. M., Tam, A. L., Marron, J. M., Mathews, D. J., Levit, K., Roach, N. & Ratain, M. J., Sep 10 2019, In : Journal of clinical oncology : official journal of the American Society of Clinical Oncology. 37, 26, p. 2368-2377 10 p.

Research output: Contribution to journalArticle

Clinical Trials
Biopsy
Research
Medical Oncology
Informed Consent

Factors affecting breastfeeding practices in Sindh province, Pakistan: A secondary analysis of cross-sectional survey data

Noh, J. W., Kim, Y-MI., Akram, N., Yoo, K. B., Cheon, J., Lee, L. J., Kwon, Y. D. & Stekelenburg, J., May 2 2019, In : International journal of environmental research and public health. 16, 10, 1689.

Research output: Contribution to journalArticle

Open Access
Pakistan
Breast Feeding
Cross-Sectional Studies
Social Class
Mothers

Factors associated with the use of antenatal care in Sindh province, Pakistan: A population-based study

Noh, J. W., Kim, Y-MI., Lee, L. J., Akram, N., Shahid, F., Kwon, Y. D. & Stekelenburg, J., Apr 1 2019, In : PloS one. 14, 4, e0213987.

Research output: Contribution to journalArticle

Open Access
prenatal care
Prenatal Care
Pakistan
Health
odds ratio

Impact of Socio-Economic Factors and Health Information Sources on Place of Birth in Sindh Province, Pakistan: A Secondary Analysis of Cross-Sectional Survey Data

Noh, J. W., Kim, Y-MI., Akram, N., Yoo, K. B., Cheon, J., Lee, L. J., Kwon, Y. D. & Stekelenburg, J., Mar 15 2019, In : International journal of environmental research and public health. 16, 6

Research output: Contribution to journalArticle

Open Access
Pakistan
Cross-Sectional Studies
Economics
Parturition
Health

Not missing the opportunity: Strategies to promote cultural humility among future nursing faculty

Hughes, V., Delva, S., Nkimbeng, M., Spaulding, E., Turkson-Ocran, R. A., Cudjoe, J., Ford, A., Rushton, C. H., D'Aoust, R. & Han, H. R., Jan 1 2019, In : Journal of Professional Nursing.

Research output: Contribution to journalArticle

Open Access
Nursing Faculties
Nursing
Nurses
Delivery of Health Care
Practice Guidelines

One-year continuation of postpartum intrauterine contraceptive device: findings from a retrospective cohort study in India

Kumar, S., Srivastava, A., Sharma, S., Yadav, V., Mittal, A., Kim, Y-MI., Nash-Mercado, A., Reijneveld, S. A. & Sood, B., Apr 1 2019, In : Contraception. 99, 4, p. 212-216 5 p.

Research output: Contribution to journalArticle

Open Access
Intrauterine Devices
Postpartum Period
India
Cohort Studies
Contraception

Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear

Peppercorn, J., Campbell, E., Isakoff, S., Horick, N. K., Rabin, J., Quain, K., Sequist, L. V., Bardia, A., Collyar, D., Hlubocky, F. & Mathews, D. J., Jan 1 2019, (Accepted/In press) In : Oncologist.

Research output: Contribution to journalArticle

Patient Preference
Informed Consent
Research
Consent Forms
Information Dissemination

Patient’s Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site

Van Pilsum Rasmussen, S. E., Seaman, S., Brown, D., Desai, N., Sulkowski, M., Segev, D. L., Durand, C. M. & Sugarman, J., Jan 1 2019, (Accepted/In press) In : AJOB Empirical Bioethics.

Research output: Contribution to journalArticle

Kidney Transplantation
Transplants
recipient
experience
Informed Consent

Personal Genetic Information about HIV: Research Participants' Views of Ethical, Social, and Behavioral Implications

Boyce, A., Walker, A., Duggal, P., Thio, C. L. & Geller, G., Jan 1 2019, (Accepted/In press) In : Public Health Genomics.

Research output: Contribution to journalArticle

Genetic Privacy
HIV
Research
Genetic Research
Family Health

Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial

for the MTN-020/ASPIRE Study Team, Apr 3 2019, In : AJOB Empirical Bioethics. 10, 2, p. 79-87 9 p.

Research output: Contribution to journalArticle

Risk-Taking
risk behavior
HIV Infections
Female Contraceptive Devices
HIV
Learning
Research
Delivery of Health Care
Health
Surveys and Questionnaires

Realizing shared decision-making in practice

Beach, M. C. & Sugarman, J., Jan 1 2019, In : JAMA - Journal of the American Medical Association. p. E1-E2

Research output: Contribution to journalArticle

Decision Making

Reported Participation Benefits in International HIV Prevention Research with People Who Inject Drugs

Sugarman, J., Trumble, I., Hamilton, E., Sarasvita, R., Dumchev, K., Viet, H., Hoffman, I., Miller, W. & Hanscom, B., Sep 1 2019, In : Ethics and Human Research. 41, 5, p. 28-34 7 p.

Research output: Contribution to journalArticle

HIV
drug
participation
drug use
Referral and Consultation

Secondary Use of Patient Tissue in Cancer Biobanks

Mathews, D. J., Rabin, J. T., Quain, K., Campbell, E., Collyar, D., Hlubocky, F. J., Isakoff, S. & Peppercorn, J., Jan 1 2019, In : Oncologist.

Research output: Contribution to journalArticle

Duty to Recontact
Research
Neoplasms
Focus Groups
Research Personnel

"Why are we doing this?" Creating new narratives to meet futility with integrity

Turner, K., Rushton, C. H. & Kurtz, M., Jun 1 2019, In : AACN advanced critical care. 30, 2, p. 198-203 6 p.

Research output: Contribution to journalArticle

Medical Futility
2018

Addressing Medical Students' Negative Bias Toward Patients With Obesity Through Ethics Education

Geller, G. & Watkins, P. A., Oct 1 2018, In : AMA journal of ethics. 20, 10, p. E948-E959

Research output: Contribution to journalArticle

Medical Students
Ethics
Obesity
Education
Students

A Road Map for Advancing the Practice of Respect in Health Care: The Results of an Interdisciplinary Modified Delphi Consensus Study

the Practice of Respect Delphi Study Group, Aug 1 2018, In : Joint Commission Journal on Quality and Patient Safety. 44, 8, p. 463-476 14 p.

Research output: Contribution to journalArticle

Delphi Technique
Consensus
Delivery of Health Care
Organizations
Patient Harm

A scalable, integrated intervention to engage people who inject drugs in HIV care and medication-assisted treatment (HPTN 074): a randomised, controlled phase 3 feasibility and efficacy study

Miller, W. C., Hoffman, I. F., Hanscom, B. S., Ha, T. V., Dumchev, K., Djoerban, Z., Rose, S. M., Latkin, C. A., Metzger, D. S., Lancaster, K. E., Go, V. F., Dvoriak, S., Mollan, K. R., Reifeis, S. A., Piwowar-Manning, E. M., Richardson, P., Hudgens, M. G., Hamilton, E. L., Sugarman, J., Eshleman, S. & 7 others, Susami, H., Chu, V. A., Djauzi, S., Kiriazova, T., Bui, D. D., Strathdee, S. A. & Burns, D. N., Sep 1 2018, In : The Lancet. 392, 10149, p. 747-759 13 p.

Research output: Contribution to journalArticle

Feasibility Studies
Standard of Care
HIV
Pharmaceutical Preparations
Injections

A social-ecological framework: A model for addressing ethical practice in nursing

Davidson, P. M., Rushton, C. H., Kurtz, M., Wise, B., Jackson, D., Beaman, A. & Broome, M., Jan 1 2018, (Accepted/In press) In : Journal of Clinical Nursing.

Research output: Contribution to journalArticle

Nursing
Delivery of Health Care
Nurses
Ethics
Nurse-Patient Relations

Climate of Respect Evaluation in ICUs: Development of an Instrument (ICU-CORE)

Beach, M. C., Topazian, R., Chan, K. S., Sugarman, J. & Geller, G., Jun 1 2018, In : Critical care medicine. 46, 6, p. e502-e507

Research output: Contribution to journalArticle

Climate
Critical Care
Quality Improvement
Psychometrics
Patient Care

Community health needs assessment: A nurses' global health project in Vietnam

Cho, S., Lee, H., Yoon, S., Kim, Y-MI., Levin, P. F. & Kim, E., Jan 1 2018, (Accepted/In press) In : International Nursing Review.

Research output: Contribution to journalArticle

Needs Assessment
Vietnam
Nurses
Health
Health Facilities

Contending Worldviews in the Clinical Encounter

Kumbamu, A., Geller, G., Leppin, A., Fernandez, C., Tilburt, J. & Koenig, B., Sep 1 2018, In : Journal of Alternative and Complementary Medicine. 24, 9-10, p. 996-1002 7 p.

Research output: Contribution to journalArticle

Complementary Therapies
Neoplasms
Communication
Medical Oncology

Correlates of Patterns of Health Values of African Americans Living With HIV/AIDS: Implications for Advance Care Planning and HIV Palliative Care

Mitchell, M. M., Hansen, E. D., Tseng, T. Y., Shen, M., Rushton, C. H., Smith, T. J., Hutton, N., Wolfe, J., Bone, L. R., Keruly, J. C., Wissow, L. S., Catanzarite, Z. & Knowlton, A. R., Jul 1 2018, In : Journal of Pain and Symptom Management. 56, 1, p. 53-62 10 p.

Research output: Contribution to journalArticle

Advance Care Planning
Palliative Care
African Americans
Acquired Immunodeficiency Syndrome
HIV

Development and implementation of participant safety plans for international research with stigmatised populations

Sugarman, J., Barnes, M., Rose, S., Dumchev, K., Sarasvita, R., Viet, H. T., Zeziulin, O., Susami, H., Go, V., Hoffman, I. & Miller, W. C., Jan 1 2018, (Accepted/In press) In : The Lancet HIV.

Research output: Contribution to journalArticle

Safety
Research
Population
HIV
Social Change
Hepacivirus
Kidney Transplantation
Antiviral Agents
Tissue Donors
Kidney

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

Mitchell, P. B., Ziniel, S. I., Savage, S. K., Christensen, K. D., Weitzman, E. R., Green, R. C., Huntington, N. L., Mathews, D. J. & Holm, I. A., Jan 1 2018, (Accepted/In press) In : Journal of Empirical Research on Human Research Ethics.

Research output: Contribution to journalArticle

autonomy
Parents
Research
research results
parents

Ethical Issues and Recommendations in Grateful Patient Fundraising and Philanthropy

Participants in the Summit on the Ethics of Grateful Patient Fundraising, Nov 1 2018, In : Academic medicine : journal of the Association of American Medical Colleges. 93, 11, p. 1631-1637 7 p.

Research output: Contribution to journalArticle

fundraising
philanthropy
physician
transparency
conflict of interest

Ethics and Regulatory Barriers to Research in Emergency Settings

Dickert, N. W. & Sugarman, J., Jan 1 2018, (Accepted/In press) In : Annals of Emergency Medicine.

Research output: Contribution to journalArticle

Ethics
Emergencies
Research

Free Will, Self-Governance and Neuroscience: An Overview

Carse, A., Bok, H. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Neuroethics.

Research output: Contribution to journalArticle

Personal Autonomy
Neurosciences
Brain
Research

Interprofessionals’ definitions of moral resilience

Holtz, H., Heinze, K. & Rushton, C. H., Feb 1 2018, In : Journal of Clinical Nursing. 27, 3-4, p. e488-e494

Research output: Contribution to journalArticle

Health Personnel
Delivery of Health Care
Research
Foster Home Care
Plague

Investigator disclosure and advanced cancer patient understanding of informed consent and prognosis in phase i clinical trials

Hlubocky, F. J., Kass, N. E., Roter, D., Larson, S. M., Wroblewski, K. E., Sugarman, J. & Daugherty, C. K., Jun 1 2018, In : Journal of Oncology Practice. 14, 6, p. e357-e367

Research output: Contribution to journalArticle

Disclosure
Informed Consent
Research Personnel
Clinical Trials
Neoplasms

Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years

Kimball, B. C., Geller, G., Warsame, R., Kumbamu, A., Jatoi, A., Koenig, B. & Tilburt, J. C., Jan 1 2018, (Accepted/In press) In : Oncologist.

Research output: Contribution to journalArticle

Complementary Therapies
Ethics

Measuring patient respect in the intensive care unit: Validation of the ICU-RESPECT instrument

Geller, G., Schell-Chaple, H., Turner, K., Anderson, W. G. & Beach, M. C., Aug 1 2018, In : Journal of Critical Care. 46, p. 63-66 4 p.

Research output: Contribution to journalArticle

Intensive Care Units
Psychometrics
Reproducibility of Results
Statistical Factor Analysis
Demography

Perceptions, motivations, and concerns about living organ donation among people living with HIV

Van Pilsum Rasmussen, S. E., Henderson, M., Bollinger, J., Seaman, S., Brown, D., Durand, C., Segev, D. & Sugarman, J., May 4 2018, (Accepted/In press) In : AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV. p. 1-5 5 p.

Research output: Contribution to journalArticle

organ donation
Tissue and Organ Procurement
donation
HIV
recipient

Perceptions of HIV cure research among people living with HIV in Australia

Power, J., Westle, A., Dowsett, G. W., Lucke, J., Tucker, J. D., Sugarman, J., Lewin, S. R., Hill, S., Brown, G., Wallace, J. & Richmond, J., Aug 1 2018, In : PLoS One. 13, 8, e0202647.

Research output: Contribution to journalArticle

HIV
Research
risk assessment
clinical trials
anxiety

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease

Stuttgen, K. M., Bollinger, J. M., Dvoskin, R. L., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jul 2 2018, (Accepted/In press) In : Journal of Genetic Counseling. p. 1-10 10 p.

Research output: Contribution to journalArticle

Huntington Disease
Genetic Testing
Incidental Findings
Decision Making
Exome
HIV
Ukraine
Pharmaceutical Preparations
Vietnam
Indonesia

Revisiting blood safety practices given emerging data about Zika Virus

Bloch, E., Ness, P. M., Tobian, A. A. & Sugarman, J., May 10 2018, In : New England Journal of Medicine. 378, 19, p. 1837-1841 5 p.

Research output: Contribution to journalArticle

Blood Safety
Zika Virus

Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect

Stuttgen, K., Dvoskin, R., Bollinger, J., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Molecular Genetics and Genomic Medicine.

Research output: Contribution to journalArticle

Huntington Disease
Genetic Testing
Disclosure
Inborn Genetic Diseases
Patient Education

Safety, tolerability, and pharmacokinetics of long-acting injectable cabotegravir in low-risk HIV-uninfected individuals: HPTN 077, a phase 2a randomized controlled trial

Landovitz, R. J., Li, S., Grinsztejn, B., Dawood, H., Liu, A. Y., Magnus, M., Hosseinipour, M. C., Panchia, R., Cottle, L., Chau, G., Richardson, P., Marzinke, M. A., Hendrix, C., Eshleman, S., Zhang, Y., Tolley, E., Sugarman, J., Kofron, R., Adeyeye, A., Burns, D. & 6 others, Rinehart, A. R., Margolis, D., Spreen, W. R., Cohen, M. S., McCauley, M. & Eron, J. J., Nov 1 2018, In : PLoS Medicine. 15, 11, e1002690.

Research output: Contribution to journalArticle

Randomized Controlled Trials
Pharmacokinetics
HIV
Safety
Injections

Tackling Ethical Challenges of Premature Delivery of Stem Cell-Based Therapies: ISSCR 2018 Annual Meeting Focus Session Report

Sugarman, J., Barker, R. A., Kerridge, I., Lysaght, T., Pellegrini, G., Sipp, D. & Tanner, C., Nov 13 2018, In : Stem Cell Reports. 11, 5, p. 1021-1025 5 p.

Research output: Contribution to journalArticle

Cell- and Tissue-Based Therapy
Stem cells
Stem Cells
Patient Advocacy
Economics

Willingness to Donate Organs Among People Living With HIV

Nguyen, A. Q., Anjum, S. K., Halpern, S. E., Kumar, K., Van Pilsum Rasmussen, S. E., Doby, B., Shaffer, A. A., Massie, A. B., Tobian, A. A., Segev, D., Sugarman, J. & Durand, C., Sep 1 2018, In : Journal of acquired immune deficiency syndromes (1999). 79, 1, p. e30-e36

Research output: Contribution to journalArticle

HIV
Tissue Donors
Tissue and Organ Procurement
Living Donors
Transplants
2017

A collaborative state of the science initiative: Transforming moral distress into moral resilience in nursing

Rushton, C. H., Schoonover-Shoffner, K. & Kennedy, M. S., 2017, In : American Journal of Nursing. 117, 2, p. S2-S6

Research output: Contribution to journalArticle

School Nursing
Nursing
American Nurses' Association
Organizations
Ethicists

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

Fiallos, K., Applegate, C., Mathews, D. J., Bollinger, J., Bergner, A. L. & James, C. A., May 1 2017, In : European Journal of Human Genetics. 25, 5, p. 530-537 8 p.

Research output: Contribution to journalArticle

Physicians
Genomics
Informed Consent
Research
Consensus

Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices

Weinfurt, K. P., Bollinger, J. M., Brelsford, K. M., Bresciani, M., Lampron, Z., Lin, L., Topazian, R. J. & Sugarman, J., Jun 23 2017, (Accepted/In press) In : Medical Care.

Research output: Contribution to journalArticle

Research
Privacy
Research Design
Surveys and Questionnaires
Health

Cultivating moral resilience

Rushton, C. H., 2017, In : American Journal of Nursing. 117, 2, p. S11-S15

Research output: Contribution to journalArticle

Research