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Article
2020

Ethics and Collateral Findings in Pragmatic Clinical Trials

Morain, S. R., Weinfurt, K., Bollinger, J., Geller, G., Mathews, D. J. H. & Sugarman, J., Jan 2 2020, In : American Journal of Bioethics. 20, 1, p. 6-18 13 p.

Research output: Contribution to journalArticle

The significance and expectations of HIV cure research among people living with HIV in Australia

Power, J., Dowsett, G. W., Westle, A., Tucker, J. D., Hill, S., Sugarman, J., Lewin, S. R., Brown, G. & Lucke, J., Jan 1 2020, In : PloS one. 15, 3, e0229733.

Research output: Contribution to journalArticle

Open Access
2019

Addressing guideline and policy changes during pragmatic clinical trials

Curtis, L. H., Dember, L. M., Vazquez, M. A., Murray, D., DeBar, L., Staman, K. L., Septimus, E., Mor, V., Volandes, A., Wells, B. L., Huang, S. S., Green, B. B., Coronado, G., Meyers, C. M., Tuzzio, L., Hernandez, A. F. & Sugarman, J., Aug 1 2019, In : Clinical trials (London, England). 16, 4, p. 431-437 7 p.

Research output: Contribution to journalArticle

A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context

Tilburt, J., Yost, K. J., Lenz, H. J., Zúñiga, M. L., O'Byrne, T., Branda, M. E., Leppin, A. L., Kimball, B., Fernandez, C., Jatoi, A., Barwise, A., Kumbamu, A., Montori, V., Koenig, B. A., Geller, G., Larson, S. M. & Roter, D., Jan 1 2019, In : Oncologist.

Research output: Contribution to journalArticle

Comparing the effectiveness of a blended learning approach with a conventional learning approach for basic emergency obstetric and newborn care training in Ethiopia

Yigzaw, M., Tebekaw, Y., Kim, Y-MI., Kols, A., Ayalew, F. & Eyassu, G., Nov 1 2019, In : Midwifery. 78, p. 42-49 8 p.

Research output: Contribution to journalArticle

Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants

Bollinger, J. M., Eno, A., Seaman, S., Brown, D., Van Pilsum Rasmussen, S. E., Tobian, A. A., Segev, D., Durand, C. & Sugarman, J., Jan 1 2019, In : Clinical Transplantation. e13617.

Research output: Contribution to journalArticle

Ethical Framework for Including Research Biopsies in Oncology Clinical Trials: American Society of Clinical Oncology Research Statement

Levit, L. A., Peppercorn, J. M., Tam, A. L., Marron, J. M., Mathews, D. J., Levit, K., Roach, N. & Ratain, M. J., Sep 10 2019, In : Journal of clinical oncology : official journal of the American Society of Clinical Oncology. 37, 26, p. 2368-2377 10 p.

Research output: Contribution to journalArticle

Factors affecting breastfeeding practices in Sindh province, Pakistan: A secondary analysis of cross-sectional survey data

Noh, J. W., Kim, Y-MI., Akram, N., Yoo, K. B., Cheon, J., Lee, L. J., Kwon, Y. D. & Stekelenburg, J., May 2 2019, In : International journal of environmental research and public health. 16, 10, 1689.

Research output: Contribution to journalArticle

Open Access

Factors associated with the use of antenatal care in Sindh province, Pakistan: A population-based study

Noh, J. W., Kim, Y-MI., Lee, L. J., Akram, N., Shahid, F., Kwon, Y. D. & Stekelenburg, J., Apr 1 2019, In : PloS one. 14, 4, e0213987.

Research output: Contribution to journalArticle

Open Access

Impact of Socio-Economic Factors and Health Information Sources on Place of Birth in Sindh Province, Pakistan: A Secondary Analysis of Cross-Sectional Survey Data

Noh, J. W., Kim, Y-MI., Akram, N., Yoo, K. B., Cheon, J., Lee, L. J., Kwon, Y. D. & Stekelenburg, J., Mar 15 2019, In : International journal of environmental research and public health. 16, 6

Research output: Contribution to journalArticle

Open Access

Not missing the opportunity: Strategies to promote cultural humility among future nursing faculty

Hughes, V., Delva, S., Nkimbeng, M., Spaulding, E., Turkson-Ocran, R. A., Cudjoe, J., Ford, A., Rushton, C. H., D'Aoust, R. & Han, H. R., Jan 1 2019, In : Journal of Professional Nursing.

Research output: Contribution to journalArticle

Open Access

One-year continuation of postpartum intrauterine contraceptive device: findings from a retrospective cohort study in India

Kumar, S., Srivastava, A., Sharma, S., Yadav, V., Mittal, A., Kim, Y-MI., Nash-Mercado, A., Reijneveld, S. A. & Sood, B., Apr 1 2019, In : Contraception. 99, 4, p. 212-216 5 p.

Research output: Contribution to journalArticle

Open Access

Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear

Peppercorn, J., Campbell, E., Isakoff, S., Horick, N. K., Rabin, J., Quain, K., Sequist, L. V., Bardia, A., Collyar, D., Hlubocky, F. & Mathews, D. J., Jan 1 2019, (Accepted/In press) In : Oncologist.

Research output: Contribution to journalArticle

Patient’s Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site

Van Pilsum Rasmussen, S. E., Seaman, S., Brown, D., Desai, N., Sulkowski, M., Segev, D. L., Durand, C. M. & Sugarman, J., Jan 1 2019, (Accepted/In press) In : AJOB Empirical Bioethics.

Research output: Contribution to journalArticle

Personal Genetic Information about HIV: Research Participants' Views of Ethical, Social, and Behavioral Implications

Boyce, A., Walker, A., Duggal, P., Thio, C. L. & Geller, G., Jan 1 2019, (Accepted/In press) In : Public Health Genomics.

Research output: Contribution to journalArticle

Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial

for the MTN-020/ASPIRE Study Team, Apr 3 2019, In : AJOB Empirical Bioethics. 10, 2, p. 79-87 9 p.

Research output: Contribution to journalArticle

Realizing shared decision-making in practice

Beach, M. C. & Sugarman, J., Jan 1 2019, In : JAMA - Journal of the American Medical Association. p. E1-E2

Research output: Contribution to journalArticle

Reported Participation Benefits in International HIV Prevention Research with People Who Inject Drugs

Sugarman, J., Trumble, I., Hamilton, E., Sarasvita, R., Dumchev, K., Viet, H., Hoffman, I., Miller, W. & Hanscom, B., Sep 1 2019, In : Ethics and Human Research. 41, 5, p. 28-34 7 p.

Research output: Contribution to journalArticle

Secondary Use of Patient Tissue in Cancer Biobanks

Mathews, D. J., Rabin, J. T., Quain, K., Campbell, E., Collyar, D., Hlubocky, F. J., Isakoff, S. & Peppercorn, J., Jan 1 2019, In : Oncologist.

Research output: Contribution to journalArticle

"Why are we doing this?" Creating new narratives to meet futility with integrity

Turner, K., Rushton, C. H. & Kurtz, M., Jun 1 2019, In : AACN advanced critical care. 30, 2, p. 198-203 6 p.

Research output: Contribution to journalArticle

2018

Addressing Medical Students' Negative Bias Toward Patients With Obesity Through Ethics Education

Geller, G. & Watkins, P. A., Oct 1 2018, In : AMA journal of ethics. 20, 10, p. E948-E959

Research output: Contribution to journalArticle

A Road Map for Advancing the Practice of Respect in Health Care: The Results of an Interdisciplinary Modified Delphi Consensus Study

the Practice of Respect Delphi Study Group, Aug 1 2018, In : Joint Commission Journal on Quality and Patient Safety. 44, 8, p. 463-476 14 p.

Research output: Contribution to journalArticle

A scalable, integrated intervention to engage people who inject drugs in HIV care and medication-assisted treatment (HPTN 074): a randomised, controlled phase 3 feasibility and efficacy study

Miller, W. C., Hoffman, I. F., Hanscom, B. S., Ha, T. V., Dumchev, K., Djoerban, Z., Rose, S. M., Latkin, C. A., Metzger, D. S., Lancaster, K. E., Go, V. F., Dvoriak, S., Mollan, K. R., Reifeis, S. A., Piwowar-Manning, E. M., Richardson, P., Hudgens, M. G., Hamilton, E. L., Sugarman, J., Eshleman, S. & 7 others, Susami, H., Chu, V. A., Djauzi, S., Kiriazova, T., Bui, D. D., Strathdee, S. A. & Burns, D. N., Sep 1 2018, In : The Lancet. 392, 10149, p. 747-759 13 p.

Research output: Contribution to journalArticle

A social-ecological framework: A model for addressing ethical practice in nursing

Davidson, P. M., Rushton, C. H., Kurtz, M., Wise, B., Jackson, D., Beaman, A. & Broome, M., Jan 1 2018, (Accepted/In press) In : Journal of Clinical Nursing.

Research output: Contribution to journalArticle

Climate of Respect Evaluation in ICUs: Development of an Instrument (ICU-CORE)

Beach, M. C., Topazian, R., Chan, K. S., Sugarman, J. & Geller, G., Jun 1 2018, In : Critical care medicine. 46, 6, p. e502-e507

Research output: Contribution to journalArticle

Community health needs assessment: A nurses' global health project in Vietnam

Cho, S., Lee, H., Yoon, S., Kim, Y-MI., Levin, P. F. & Kim, E., Jan 1 2018, (Accepted/In press) In : International Nursing Review.

Research output: Contribution to journalArticle

Contending Worldviews in the Clinical Encounter

Kumbamu, A., Geller, G., Leppin, A., Fernandez, C., Tilburt, J. & Koenig, B., Sep 1 2018, In : Journal of Alternative and Complementary Medicine. 24, 9-10, p. 996-1002 7 p.

Research output: Contribution to journalArticle

Correlates of Patterns of Health Values of African Americans Living With HIV/AIDS: Implications for Advance Care Planning and HIV Palliative Care

Mitchell, M. M., Hansen, E. D., Tseng, T. Y., Shen, M., Rushton, C. H., Smith, T. J., Hutton, N., Wolfe, J., Bone, L. R., Keruly, J. C., Wissow, L. S., Catanzarite, Z. & Knowlton, A. R., Jul 1 2018, In : Journal of Pain and Symptom Management. 56, 1, p. 53-62 10 p.

Research output: Contribution to journalArticle

Development and implementation of participant safety plans for international research with stigmatised populations

Sugarman, J., Barnes, M., Rose, S., Dumchev, K., Sarasvita, R., Viet, H. T., Zeziulin, O., Susami, H., Go, V., Hoffman, I. & Miller, W. C., Jan 1 2018, (Accepted/In press) In : The Lancet HIV.

Research output: Contribution to journalArticle

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

Mitchell, P. B., Ziniel, S. I., Savage, S. K., Christensen, K. D., Weitzman, E. R., Green, R. C., Huntington, N. L., Mathews, D. J. & Holm, I. A., Jan 1 2018, (Accepted/In press) In : Journal of Empirical Research on Human Research Ethics.

Research output: Contribution to journalArticle

Ethical Issues and Recommendations in Grateful Patient Fundraising and Philanthropy

Participants in the Summit on the Ethics of Grateful Patient Fundraising, Nov 1 2018, In : Academic medicine : journal of the Association of American Medical Colleges. 93, 11, p. 1631-1637 7 p.

Research output: Contribution to journalArticle

Ethics and Regulatory Barriers to Research in Emergency Settings

Dickert, N. W. & Sugarman, J., Jan 1 2018, (Accepted/In press) In : Annals of Emergency Medicine.

Research output: Contribution to journalArticle

Free Will, Self-Governance and Neuroscience: An Overview

Carse, A., Bok, H. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Neuroethics.

Research output: Contribution to journalArticle

Interprofessionals’ definitions of moral resilience

Holtz, H., Heinze, K. & Rushton, C. H., Feb 1 2018, In : Journal of Clinical Nursing. 27, 3-4, p. e488-e494

Research output: Contribution to journalArticle

Investigator disclosure and advanced cancer patient understanding of informed consent and prognosis in phase i clinical trials

Hlubocky, F. J., Kass, N. E., Roter, D., Larson, S. M., Wroblewski, K. E., Sugarman, J. & Daugherty, C. K., Jun 1 2018, In : Journal of Oncology Practice. 14, 6, p. e357-e367

Research output: Contribution to journalArticle

Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years

Kimball, B. C., Geller, G., Warsame, R., Kumbamu, A., Jatoi, A., Koenig, B. & Tilburt, J. C., Jan 1 2018, (Accepted/In press) In : Oncologist.

Research output: Contribution to journalArticle

Measuring patient respect in the intensive care unit: Validation of the ICU-RESPECT instrument

Geller, G., Schell-Chaple, H., Turner, K., Anderson, W. G. & Beach, M. C., Aug 1 2018, In : Journal of Critical Care. 46, p. 63-66 4 p.

Research output: Contribution to journalArticle

Perceptions, motivations, and concerns about living organ donation among people living with HIV

Van Pilsum Rasmussen, S. E., Henderson, M., Bollinger, J., Seaman, S., Brown, D., Durand, C., Segev, D. & Sugarman, J., May 4 2018, (Accepted/In press) In : AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV. p. 1-5 5 p.

Research output: Contribution to journalArticle

Perceptions of HIV cure research among people living with HIV in Australia

Power, J., Westle, A., Dowsett, G. W., Lucke, J., Tucker, J. D., Sugarman, J., Lewin, S. R., Hill, S., Brown, G., Wallace, J. & Richmond, J., Aug 1 2018, In : PLoS One. 13, 8, e0202647.

Research output: Contribution to journalArticle

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease

Stuttgen, K. M., Bollinger, J. M., Dvoskin, R. L., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jul 2 2018, (Accepted/In press) In : Journal of Genetic Counseling. p. 1-10 10 p.

Research output: Contribution to journalArticle

Revisiting blood safety practices given emerging data about Zika Virus

Bloch, E., Ness, P. M., Tobian, A. A. & Sugarman, J., May 10 2018, In : New England Journal of Medicine. 378, 19, p. 1837-1841 5 p.

Research output: Contribution to journalArticle

Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect

Stuttgen, K., Dvoskin, R., Bollinger, J., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Molecular Genetics and Genomic Medicine.

Research output: Contribution to journalArticle

Safety, tolerability, and pharmacokinetics of long-acting injectable cabotegravir in low-risk HIV-uninfected individuals: HPTN 077, a phase 2a randomized controlled trial

Landovitz, R. J., Li, S., Grinsztejn, B., Dawood, H., Liu, A. Y., Magnus, M., Hosseinipour, M. C., Panchia, R., Cottle, L., Chau, G., Richardson, P., Marzinke, M. A., Hendrix, C., Eshleman, S., Zhang, Y., Tolley, E., Sugarman, J., Kofron, R., Adeyeye, A., Burns, D. & 6 others, Rinehart, A. R., Margolis, D., Spreen, W. R., Cohen, M. S., McCauley, M. & Eron, J. J., Nov 1 2018, In : PLoS Medicine. 15, 11, e1002690.

Research output: Contribution to journalArticle

Tackling Ethical Challenges of Premature Delivery of Stem Cell-Based Therapies: ISSCR 2018 Annual Meeting Focus Session Report

Sugarman, J., Barker, R. A., Kerridge, I., Lysaght, T., Pellegrini, G., Sipp, D. & Tanner, C., Nov 13 2018, In : Stem Cell Reports. 11, 5, p. 1021-1025 5 p.

Research output: Contribution to journalArticle

Willingness to Donate Organs Among People Living With HIV

Nguyen, A. Q., Anjum, S. K., Halpern, S. E., Kumar, K., Van Pilsum Rasmussen, S. E., Doby, B., Shaffer, A. A., Massie, A. B., Tobian, A. A., Segev, D., Sugarman, J. & Durand, C., Sep 1 2018, In : Journal of acquired immune deficiency syndromes (1999). 79, 1, p. e30-e36

Research output: Contribution to journalArticle

2017

A collaborative state of the science initiative: Transforming moral distress into moral resilience in nursing

Rushton, C. H., Schoonover-Shoffner, K. & Kennedy, M. S., 2017, In : American Journal of Nursing. 117, 2, p. S2-S6

Research output: Contribution to journalArticle

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

Fiallos, K., Applegate, C., Mathews, D. J., Bollinger, J., Bergner, A. L. & James, C. A., May 1 2017, In : European Journal of Human Genetics. 25, 5, p. 530-537 8 p.

Research output: Contribution to journalArticle