Academic Centers

Research Output

2018

Development and implementation of participant safety plans for international research with stigmatised populations

Sugarman, J., Barnes, M., Rose, S., Dumchev, K., Sarasvita, R., Viet, H. T., Zeziulin, O., Susami, H., Go, V., Hoffman, I. & Miller, W. C., Aug 2018, In : The Lancet HIV. 5, 8, p. e468-e472

Research output: Contribution to journalComment/debate

Direct-Acting Antivirals and Hepatitis C: The Ethics of Price and Rationing by Genotype

Walker, A., Boyce, A., Geller, G., Thio, C. L. & Kahn, J. P., Aug 31 2018, In : Clinical Infectious Diseases. 67, 6, p. 983-984 2 p.

Research output: Contribution to journalComment/debate

Editors’ introduction to the special section on ethics, policy, and autologous cellular therapies

Lysaght, T. & Sugarman, J., Dec 1 2018, In : Perspectives in Biology and Medicine. 61, 1, p. 1-6 6 p.

Research output: Contribution to journalEditorial

Emerging stem cell ethics

Sipp, D., Munsie, M. & Sugarman, J., Jun 22 2018, In : Science. 360, 6395, 1 p.

Research output: Contribution to journalEditorial

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

Mitchell, P. B., Ziniel, S. I., Savage, S. K., Christensen, K. D., Weitzman, E. R., Green, R. C., Huntington, N. L., Mathews, D. J. & Holm, I. A., Jan 1 2018, (Accepted/In press) In : Journal of Empirical Research on Human Research Ethics.

Research output: Contribution to journalArticle

Ethical considerations concerning amnioinfusions for treating fetal bilateral renal agenesis

Sugarman, J., Anderson, J., Baschat, A. A., Herrera Beutler, J., Bienstock, J. L., Bunchman, T. E., Desai, N. M., Gates, E., Goldberg, A., Grimm, P. C., Henry, L. M., Jelin, E. B., Johnson, E., Hertenstein, C. B., Mastroianni, A. C., Mercurio, M. R., Neu, A., Nogee, L. M., Polzin, W. J., Ralston, S. J. & 5 others, Ramus, R. M., Singleton, M. K., Somers, M. J. G., Wang, K. C. & Boss, R., Jan 1 2018, In : Obstetrics and gynecology. 131, 1, p. 130-134 5 p.

Research output: Contribution to journalArticle

Ethical considerations in global HIV phylogenetic research

Ethics in HIV Phylogenetics Working Group, Nov 1 2018, In : The Lancet HIV. 5, 11, p. e656-e666

Research output: Contribution to journalReview article

Ethical Considerations in the Manufacture, Sale, and Distribution of Genome Editing Technologies

Sugarman, J., Shivakumar, S., Rook, M., Loring, J. F., Rehmann-Sutter, C., Taupitz, J., Reinhard-Rupp, J. & Hildemann, S., Aug 3 2018, In : American Journal of Bioethics. 18, 8, p. 3-6 4 p.

Research output: Contribution to journalEditorial

Ethical issues and recommendations in grateful patient fundraising and philanthropy

Collins, M. E., Rum, S., Wheeler, J., Antman, K., Brem, H., Carrese, J., Glennon, M., Kahn, J., Ohman, E. M., Jagsi, R., Konrath, S., Tovino, S., Wright, S. & Sugarman, J., Jan 1 2018, In : Academic Medicine. 93, 11, p. 1631-1637 7 p.

Research output: Contribution to journalReview article

Ethics and Regulatory Barriers to Research in Emergency Settings

Dickert, N. W. & Sugarman, J., Jan 1 2018, (Accepted/In press) In : Annals of Emergency Medicine.

Research output: Contribution to journalArticle

Factors affecting complete and timely childhood immunization coverage in Sindh, Pakistan; A secondary analysis of crosssectional survey data

Noh, J. W., Kim, Y. M., Akram, N., Yoo, K. B., Park, J., Cheon, J., Kwon, Y. D. & Stekelenburg, J., Oct 2018, In : PloS one. 13, 10, e0206766.

Research output: Contribution to journalReview article

Factors associated with institutional delivery: Findings from a cross-sectional study in Mara and Kagera regions in Tanzania

Bishanga, D. R., Drake, M., Kim, Y. M., Mwanamsangu, A. H., Makuwani, A. M., Zoungrana, J., Lemwayi, R., Rijken, M. J. & Stekelenburg, J., Dec 2018, In : PloS one. 13, 12, e0209672.

Research output: Contribution to journalArticle

Free Will, Self-Governance and Neuroscience: An Overview

Carse, A., Bok, H. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Neuroethics.

Research output: Contribution to journalArticle

Implementing post-trial access plans for HIV prevention research

Paul, A., Merritt, M. W. & Sugarman, J., May 1 2018, In : Journal of medical ethics. 44, 5, p. 354-358 5 p.

Research output: Contribution to journalReview article

Improvement in the active management of the third stage of labor for the prevention of postpartum hemorrhage in Tanzania: A cross-sectional study

Bishanga, D. R., Charles, J., Tibaijuka, G., Mutayoba, R., Drake, M., Kim, Y. M., Plotkin, M., Rusibamayila, N. & Rawlins, B., Jun 13 2018, In : BMC pregnancy and childbirth. 18, 1, 223.

Research output: Contribution to journalArticle

Interprofessionals’ definitions of moral resilience

Holtz, H., Heinze, K. & Rushton, C. H., Feb 1 2018, In : Journal of Clinical Nursing. 27, 3-4, p. e488-e494

Research output: Contribution to journalArticle

Investigator disclosure and advanced cancer patient understanding of informed consent and prognosis in phase i clinical trials

Hlubocky, F. J., Kass, N. E., Roter, D., Larson, S. M., Wroblewski, K. E., Sugarman, J. & Daugherty, C. K., Jun 1 2018, In : Journal of Oncology Practice. 14, 6, p. e357-e367

Research output: Contribution to journalArticle

Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years

Kimball, B. C., Geller, G., Warsame, R., Kumbamu, A., Jatoi, A., Koenig, B. & Tilburt, J. C., Jan 1 2018, (Accepted/In press) In : Oncologist.

Research output: Contribution to journalArticle

Measuring patient respect in the intensive care unit: Validation of the ICU-RESPECT instrument

Geller, G., Schell-Chaple, H., Turner, K., Anderson, W. G. & Beach, M. C., Aug 1 2018, In : Journal of Critical Care. 46, p. 63-66 4 p.

Research output: Contribution to journalArticle

Navigating the ethical boundaries of grateful patient fundraising

Collins, M., Rum, S. A. & Sugarman, J., Sep 11 2018, In : JAMA - Journal of the American Medical Association. 320, 10, p. 975-976 2 p.

Research output: Contribution to journalShort survey

Perceptions, motivations, and concerns about living organ donation among people living with HIV

Van Pilsum Rasmussen, S. E., Henderson, M., Bollinger, J., Seaman, S., Brown, D., Durand, C., Segev, D. & Sugarman, J., May 4 2018, (Accepted/In press) In : AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV. p. 1-5 5 p.

Research output: Contribution to journalArticle

Perceptions of HIV cure research among people living with HIV in Australia

Power, J., Westle, A., Dowsett, G. W., Lucke, J., Tucker, J. D., Sugarman, J., Lewin, S. R., Hill, S., Brown, G., Wallace, J. & Richmond, J., Aug 1 2018, In : PLoS One. 13, 8, e0202647.

Research output: Contribution to journalArticle

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease

Stuttgen, K. M., Bollinger, J. M., Dvoskin, R. L., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jul 2 2018, (Accepted/In press) In : Journal of Genetic Counseling. p. 1-10 10 p.

Research output: Contribution to journalArticle

Revisiting blood safety practices given emerging data about Zika Virus

Bloch, E., Ness, P. M., Tobian, A. A. & Sugarman, J., May 10 2018, In : New England Journal of Medicine. 378, 19, p. 1837-1841 5 p.

Research output: Contribution to journalArticle

Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect

Stuttgen, K., Dvoskin, R., Bollinger, J., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J., Jan 1 2018, (Accepted/In press) In : Molecular Genetics and Genomic Medicine.

Research output: Contribution to journalArticle

Safety, tolerability, and pharmacokinetics of long-acting injectable cabotegravir in low-risk HIV-uninfected individuals: HPTN 077, a phase 2a randomized controlled trial

Landovitz, R. J., Li, S., Grinsztejn, B., Dawood, H., Liu, A. Y., Magnus, M., Hosseinipour, M. C., Panchia, R., Cottle, L., Chau, G., Richardson, P., Marzinke, M. A., Hendrix, C. W., Eshleman, S. H., Zhang, Y., Tolley, E., Sugarman, J., Kofron, R., Adeyeye, A., Burns, D. & 6 others, Rinehart, A. R., Margolis, D., Spreen, W. R., Cohen, M. S., McCauley, M. & Eron, J. J., Nov 2018, In : PLoS medicine. 15, 11, e1002690.

Research output: Contribution to journalArticle

Tackling Ethical Challenges of Premature Delivery of Stem Cell-Based Therapies: ISSCR 2018 Annual Meeting Focus Session Report

Sugarman, J., Barker, R. A., Kerridge, I., Lysaght, T., Pellegrini, G., Sipp, D. & Tanner, C., Nov 13 2018, In : Stem Cell Reports. 11, 5, p. 1021-1025 5 p.

Research output: Contribution to journalArticle

The practice of respect in the ICU

Brown, S. M., Azoulay, E., Benoit, D., Butler, T. P., Folcarelli, P., Geller, G., Rozenblum, R., Sands, K., Sokol-Hessner, L., Talmor, D., Turner, K. & Howell, M. D., Jun 1 2018, In : American Journal of Respiratory and Critical Care Medicine. 197, 11, p. 1389-1395 7 p.

Research output: Contribution to journalReview article

The Therapeutic Misconception: An Examination of its Normative Assumptions and a Call for its Revision

Mathews, D. J., Fins, J. J. & Racine, E., Jan 1 2018, In : Cambridge Quarterly of Healthcare Ethics. 27, 1, p. 154-162 9 p.

Research output: Contribution to journalReview article

Use of placebo in supplementation studies-vitamin D research illustrates an ethical quandary

Frame, L. A., Fischer, J. P., Geller, G. & Cheskin, L. J., Mar 13 2018, In : Nutrients. 10, 3, 347.

Research output: Contribution to journalReview article

Willingness to Donate Organs Among People Living With HIV

Nguyen, A. Q., Anjum, S. K., Halpern, S. E., Kumar, K., Van Pilsum Rasmussen, S. E., Doby, B., Shaffer, A. A., Massie, A. B., Tobian, A. A., Segev, D., Sugarman, J. & Durand, C., Sep 1 2018, In : Journal of acquired immune deficiency syndromes (1999). 79, 1, p. e30-e36

Research output: Contribution to journalArticle

2017

A collaborative state of the science initiative: Transforming moral distress into moral resilience in nursing

Rushton, C. H., Schoonover-Shoffner, K. & Kennedy, M. S., 2017, In : American Journal of Nursing. 117, 2, p. S2-S6

Research output: Contribution to journalArticle

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

Fiallos, K., Applegate, C., Mathews, D. J., Bollinger, J., Bergner, A. L. & James, C. A., May 1 2017, In : European Journal of Human Genetics. 25, 5, p. 530-537 8 p.

Research output: Contribution to journalArticle

Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices

Weinfurt, K. P., Bollinger, J. M., Brelsford, K. M., Bresciani, M., Lampron, Z., Lin, L., Topazian, R. J. & Sugarman, J., Jan 1 2017, In : Medical care. 55, 11, p. 970-978 9 p.

Research output: Contribution to journalArticle

Cultivating moral resilience

Rushton, C. H., 2017, In : American Journal of Nursing. 117, 2, p. S11-S15

Research output: Contribution to journalArticle

Dilemmas in access to medicines: a humanitarian perspective – Authors' reply

Emanuel, E. J. & Persad, G., Mar 11 2017, In : The Lancet. 389, 10073, p. 1008-1009 2 p.

Research output: Contribution to journalLetter

Dolutegravir monotherapy: When should clinical practice be clinical research?

Gallant, J. & Sugarman, J., 2017, In : Antiviral Therapy. 22, 2, p. 93-95 3 p.

Research output: Contribution to journalComment/debate

Downward mobility and Rawlsian justice

Persad, G., Feb 1 2017, (Accepted/In press) In : Philosophical Studies. p. 1-24 24 p.

Research output: Contribution to journalArticle

Ethical issues in human organoid and gastruloid research

Munsie, M., Hyun, I. & Sugarman, J., Mar 15 2017, In : Development (Cambridge). 144, 6, p. 942-945 4 p.

Research output: Contribution to journalArticle

Ethics and Medical Toxicology Research

Sugarman, J. & Stolbach, A., May 24 2017, (Accepted/In press) In : Journal of Medical Toxicology. p. 1-4 4 p.

Research output: Contribution to journalArticle

Evidence-Based Strategies for Shortening Informed Consent Forms in Clinical Research

Corneli, A., Namey, E., Mueller, M. P., Tharaldson, J., Sortijas, S., Grey, T. & Sugarman, J., Feb 1 2017, In : Journal of Empirical Research on Human Research Ethics. 12, 1, p. 14-25 12 p.

Research output: Contribution to journalArticle

Examining Provisions Related to Consent in the Revised Common Rule

Sugarman, J., Jul 3 2017, In : American Journal of Bioethics. 17, 7, p. 22-26 5 p.

Research output: Contribution to journalArticle

Executive Summary: Transforming Moral Distress into Moral Resilience in Nursing

Rushton, C. H., Schoonover-Shoffner, K. & Kennedy, M. S., Apr 1 2017, In : Journal of Christian nursing : a quarterly publication of Nurses Christian Fellowship. 34, 2, p. 82-86 5 p.

Research output: Contribution to journalArticle

Executive Summary: Transforming Moral Distress into Moral Resilience in Nursing

Rushton, C. H., Schoonover-Shoffner, K. & Kennedy, M. S., Feb 1 2017, In : The American journal of nursing. 117, 2, p. 52-56 5 p.

Research output: Contribution to journalArticle

Getting the ethics right regarding research in the emergency setting: Lessons from the PolyHeme Study

Dicker, N. W. & Sugarman, J., Mar 2 2017, Emergency Research Ethics. Taylor and Francis, Vol. 4. p. 229-246 18 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Harnessing the Promise of Moral Distress: A Call for Re-Orientation

Carse, A. & Rushton, C. H., Mar 1 2017, In : The Journal of clinical ethics. 28, 1, p. 15-29 15 p.

Research output: Contribution to journalArticle