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Research Output

Article

Determining the Number of Refugees to Be Resettled in the United States: An Ethical and Policy Analysis of Policy-Level Stakeholder Views

Fabi, R., Serwer, D., Singh, N. S., Persad, G., Spiegel, P. & Rubenstein, L., 2020, (Accepted/In press) In : Journal of Immigrant and Refugee Studies.

Research output: Contribution to journalArticle

Developing ethics guidance for HIV prevention research: The HIV Prevention Trials Network approach

Rennie, S. & Sugarman, J., Dec 2010, In : Journal of medical ethics. 36, 12, p. 810-815 6 p.

Research output: Contribution to journalArticle

Development and Validation of a Capacity for Wonder Scale for Use in Educational Settings

Geller, G., Steinman, C., Caldwell, M., Goldberg, H., Hanlon, C., Wonnell, T. & Merritt, M. W., Jan 1 2020, (Accepted/In press) In : Journal of Psychoeducational Assessment.

Research output: Contribution to journalArticle

Development and Validation of a Risk Score for Chronic Kidney Disease in HIV Infection Using Prospective Cohort Data from the D:A:D Study

D:A:D study group, the Royal Free Hospital Clinic Cohort, and the INSIGHT, SMART, and ESPRIT study groups, Mar 1 2015, In : PLoS medicine. 12, 3, e1001809.

Research output: Contribution to journalArticle

Development of the Verona coding definitions of emotional sequences to code health providers' responses (VR-CoDES-P) to patient cues and concerns

Del Piccolo, L., de Haes, H., Heaven, C., Jansen, J., Verheul, W., Bensing, J., Bergvik, S., Deveugele, M., Eide, H., Fletcher, I., Goss, C., Humphris, G., Kim, Y. M., Langewitz, W., Mazzi, M. A., Mjaaland, T., Moretti, F., Nübling, M., Rimondini, M., Salmon, P. & 8 others, Sibbern, T., Skre, I., van Dulmen, S., Wissow, L., Young, B., Zandbelt, L., Zimmermann, C. & Finset, A., Feb 2011, In : Patient Education and Counseling. 82, 2, p. 149-155 7 p.

Research output: Contribution to journalArticle

Diabetes and risk of fracture-related hospitalization: The atherosclerosis risk in communities study

Schneider, A. L. C., Williams, E. K., Brancati, F. L., Blecker, S., Coresh, J. & Selvin, E., May 2013, In : Diabetes care. 36, 5, p. 1153-1158 6 p.

Research output: Contribution to journalArticle

Differences in counseling men and women: Family planning in Kenya

Kim, Y. M., Kols, A., Mwarogo, P. & Awasum, D., Jan 1 2000, In : Patient Education and Counseling. 39, 1, p. 37-47 11 p.

Research output: Contribution to journalArticle

Differentials in neonatal mortality in two adjacent rural areas of Bangladesh: Lessons for neonatal health interventions

Baqui, A. H., Arifeen, S. E., Darmstadt, G. L., Ahmed, S., Seraji, H. R., Winch, P. J., Williams, E. K., Santosham, M. & Black, R. E., Oct 30 2008, In : Global public health. 3, 4, p. 366-382 17 p.

Research output: Contribution to journalArticle

Disclosing conflicts of interest in clinical research: Views of institutional review boards, conflict of interest committees, and investigators

Weinfurt, K. P., Friedman, J. Y., Dinan, M. A., Allsbrook, J. S., Hall, M. A., Dhillon, J. K. & Sugarman, J., Sep 1 2006, In : Journal of Law, Medicine and Ethics. 34, 3, p. 581-591 11 p.

Research output: Contribution to journalArticle

Disclosure of financial relationships to participants in clinical research

Weinfurt, K. P., Hall, M. A., King, N. M. P., Friedman, J. Y., Schulman, K. A. & Sugarman, J., Aug 27 2009, In : New England Journal of Medicine. 361, 9, 1 p.

Research output: Contribution to journalArticle

Distress and burnout among genetic service providers

Bernhardt, B. A., Rushton, C. H., Carrese, J., Pyeritz, R. E., Kolodner, K. & Geller, G., Jul 2009, In : Genetics in Medicine. 11, 7, p. 527-535 9 p.

Research output: Contribution to journalArticle

Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care?

Beach, M. C., Sugarman, J., Johnson, R. L., Arbelaez, J. J., Duggan, P. S. & Cooper, L. A., Jul 2005, In : Annals of family medicine. 3, 4, p. 331-338 8 p.

Research output: Contribution to journalArticle

Downward mobility and Rawlsian justice

Persad, G., Feb 1 2017, (Accepted/In press) In : Philosophical Studies. p. 1-24 24 p.

Research output: Contribution to journalArticle

Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants

Bollinger, J. M., Eno, A., Seaman, S., Brown, D., Van Pilsum Rasmussen, S. E., Tobian, A. A. R., Segev, D. L., Durand, C. M. & Sugarman, J., Jul 2019, In : Clinical Transplantation. 33, 7, e13617.

Research output: Contribution to journalArticle

Educating Patients about Cystic Fibrosis Carrier Screening in a Primary Care Setting

Bernhardt, B. A., Chase, G. A., Faden, R. R., Geller, G., Hofman, K. J., Tambor, E. S. & Holtzman, N. A., Jun 1996, In : Archives of family medicine. 5, 6, p. 336-340 5 p.

Research output: Contribution to journalArticle

Educational approaches to the responsible conduct of clinical research: An exploratory study

DeBruin, D. A., Scholder, S. L., Kahn, J., Mastroianni, A. C., Marshall, M. F., Lantos, J. & Sugarman, J., Jan 2007, In : Academic Medicine. 82, 1, p. 32-39 8 p.

Research output: Contribution to journalArticle

Effectiveness of home-based management of newborn infections by community health workers in rural Bangladesh

Baqui, A. H., Arifeen, S. E., Williams, E. K., Ahmed, S., Mannan, I., Rahman, S. M., Begum, N., Seraji, H. R., Winch, P. J., Santosham, M., Black, R. E. & Darmstadt, G. L., Apr 2009, In : Pediatric Infectious Disease Journal. 28, 4, p. 304-310 7 p.

Research output: Contribution to journalArticle

Effect of community-based newborn-care intervention package implemented through two service-delivery strategies in Sylhet district, Bangladesh: a cluster-randomised controlled trial

Baqui, A. H., El-Arifeen, S., Darmstadt, G. L., Ahmed, S., Williams, E. K., Seraji, H. R., Mannan, I., Rahman, S. M., Shah, R., Saha, S. K., Syed, U., Winch, P. J., Lefevre, A., Santosham, M. & Black, R. E., Jun 9 2008, In : The Lancet. 371, 9628, p. 1936-1944 9 p.

Research output: Contribution to journalArticle

Effect of community-based newborn care on cause-specific neonatal mortality in Sylhet district, Bangladesh: Findings of a cluster-randomized controlled trial

Baqui, A. H., Williams, E., El-Arifeen, S., Applegate, J. A., Mannan, I., Begum, N., Rahman, S. M., Ahmed, S., Black, R. E. & Darmstadt, G. L., Jan 1 2016, In : Journal of Perinatology. 36, 1, p. 71-76 6 p.

Research output: Contribution to journalArticle

Effect of knowledge of community health workers on essential newborn health care: A study from rural India

Agrawal, P. K., Agrawal, S., Ahmed, S., Darmstadt, G. L., Williams, E. K., Rosen, H. E., Kumar, V., Kiran, U., Ahuja, R. C., Srivastava, V. K., Santosham, M., Black, R. E. & Baqui, A. H., Mar 1 2012, In : Health policy and planning. 27, 2, p. 115-126 12 p.

Research output: Contribution to journalArticle

Effect of timing of first postnatal care home visit on neonatal mortality in Bangladesh: A observational cohort study

Baqui, A. H., Ahmed, S., El Arifeen, S., Darmstadt, G. L., Rosecrans, A. M., Mannan, I., Rahman, S. M., Begum, N., Mahmud, A. B. A., Seraji, H. R., Williams, E. K., Winch, P. J., Santosham, M. & Black, R. E., Aug 22 2009, In : BMJ (Online). 339, 7718, p. 445-448 4 p.

Research output: Contribution to journalArticle

Effects of a performance and quality improvement intervention on the work environment in HIV-related care: A quasi-experimental evaluation in Zambia

Bazant, E., Sarkar, S., Banda, J., Kanjipite, W., Reinhardt, S., Shasulwe, H., Mulilo, J. M. C. & Kim, Y. M., 2014, In : Human resources for health. 12, 1, 73.

Research output: Contribution to journalArticle

Effects of a performance and quality improvement intervention on the work environment in HIV-related care: A quasi-experimental evaluation in Zambia

Bazant, E., Sarkar, S., Banda, J., Kanjipite, W., Reinhardt, S., Shasulwe, H., Mulilo, J. M. C. & Kim, Y. M., Jan 1 2014, In : Health and Quality of Life Outcomes. 12, 1, 73.

Research output: Contribution to journalArticle

Effects of disclosing financial interests on attitudes toward clinical research

Weinfurt, K. P., Hall, M. A., Dinan, M. A., DePuy, V., Friedman, J. Y., Allsbrook, J. S. & Sugarman, J., Jun 1 2008, In : Journal of general internal medicine. 23, 6, p. 860-866 7 p.

Research output: Contribution to journalArticle

Effects of disclosing financial interests on participation in medical research: A randomized vignette trial

Weinfurt, K. P., Hall, M. A., Friedman, J. Y., Hardy, N. C., Fortune-Greeley, A. K., Lawlor, J. S., Allsbrook, J. S., Lin, L., Schulman, K. A. & Sugarman, J., Oct 1 2008, In : American heart journal. 156, 4, p. 689-697 9 p.

Research output: Contribution to journalArticle

Effects of obstetrician gender on communication and patient satisfaction

Roter, D. L., GELLER, GAIL. A. I. L., BERNHARDT, BARBARA. A., LARSON, SUSAN. M. & DOKSUM, TERESA., May 1999, In : Obstetrics and gynecology. 93, 5, p. 635-641 7 p.

Research output: Contribution to journalArticle

Empirical research on informed consent with the cognitively impaired.

Hougham, G. W., Sachs, G. A., Danner, D., Mintz, J., Patterson, M., Roberts, L. W., Siminoff, L. A., Sugarman, J., Whitehouse, P. J. & Wirshing, D., 2003, In : IRB. Suppl 25, 5, p. S26-S32

Research output: Contribution to journalArticle

End-of-life issues in intensive care units: A national random survey of nurses' knowledge and beliefs

Puntillo, K. A., Benner, P., Drought, T., Drew, B., Stotts, N., Stannard, D., Rushton, C., Scanlon, C. & White, C., Jul 1 2001, In : American Journal of Critical Care. 10, 4, p. 216-229 14 p.

Research output: Contribution to journalArticle

Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study

Berry, J. D., Bedlack, R., Mathews, D., Agnese, W. & Apple, S., 2020, (Accepted/In press) In : Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.

Research output: Contribution to journalArticle

Open Access

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

Mitchell, P. B., Ziniel, S. I., Savage, S. K., Christensen, K. D., Weitzman, E. R., Green, R. C., Huntington, N. L., Mathews, D. J. & Holm, I. A., Apr 1 2018, In : Journal of Empirical Research on Human Research Ethics. 13, 2, p. 125-138 14 p.

Research output: Contribution to journalArticle

Establishing midwifery in low-resource settings: Guidance from a mixed-methods evaluation of the Afghanistan midwifery education program

Zainullah, P., Ansari, N., Yari, K., Azimi, M., Turkmani, S., Azfar, P., LeFevre, A., Mungia, J., Gubin, R., Kim, Y. M. & Bartlett, L., Oct 1 2014, In : Midwifery. 30, 10, p. 1056-1062 7 p.

Research output: Contribution to journalArticle

Ethical and policy issues relating to progenitor-cell-based strategies for prevention of atherosclerosis

Liao, S. M., Goldschmidt, P. J., Sugarman, J., Bok, H., Brown, H., Alta Charo, R., Faden, R., Hare, J., Kahn, J., Kurtzberg, J., Manton, K. G., Moreno, J., Shanawani, H., Sulmasy, D. P., Taylor, H. & Zoloth, L., Nov 2007, In : Journal of medical ethics. 33, 11, p. 643-646 4 p.

Research output: Contribution to journalArticle

Ethical and regulatory issues of pragmatic cluster randomized trials in contemporary health systems

Anderson, M. L., Califf, R. M. & Sugarman, J., Jun 11 2015, In : Clinical Trials. 12, 3, p. 276-286 11 p.

Research output: Contribution to journalArticle

Ethical challenges in international HIV prevention research

MacQueen, K. M., Shapiro, K., Karim, Q. A. & Sugarman, J., Dec 1 2004, In : Accountability in Research. 11, 1, p. 49-61 13 p.

Research output: Contribution to journalArticle

Ethical challenges in stem cell research and treatment

Sugarman, J., Dec 1 2013, In : Journal of the University of Malaya Medical Centre. 16, SPECIAL, 1 p.

Research output: Contribution to journalArticle

Ethical considerations concerning amnioinfusions for treating fetal bilateral renal agenesis

Sugarman, J., Anderson, J., Baschat, A. A., Herrera Beutler, J., Bienstock, J. L., Bunchman, T. E., Desai, N. M., Gates, E., Goldberg, A., Grimm, P. C., Henry, L. M., Jelin, E. B., Johnson, E., Hertenstein, C. B., Mastroianni, A. C., Mercurio, M. R., Neu, A., Nogee, L. M., Polzin, W. J., Ralston, S. J. & 5 others, Ramus, R. M., Singleton, M. K., Somers, M. J. G., Wang, K. C. & Boss, R., Jan 1 2018, In : Obstetrics and gynecology. 131, 1, p. 130-134 5 p.

Research output: Contribution to journalArticle

Ethical considerations in determining standard of prevention packages for HIV prevention trials: Examining PrEP

Haire, B., Folayan, M. O., Hankins, C., Sugarman, J., Mccormack, S., Ramjee, G. & Warren, M., Aug 2013, In : Developing World Bioethics. 13, 2, p. 87-94 8 p.

Research output: Contribution to journalArticle

Ethical discernment and action: The art of pause

Rushton, C. H., Jan 1 2009, In : AACN advanced critical care. 20, 1, p. 108-111 4 p.

Research output: Contribution to journalArticle

Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy

Harrison, K. L., Geller, G., Marshall, P., Tilburt, J. C., Mercer, M. B., Brinich, M. A., Highland, J., Farrell, R. M. & Sharp, R. R., Jul 1 2012, In : AJOB Primary Research. 3, 3, p. 12-20 9 p.

Research output: Contribution to journalArticle

Ethical framework for including research biopsies in oncology clinical trials: American Society of Clinical oncology research statement

Levit, L. A., Peppercorn, J. M., Tam, A. L., Marron, J. M., Mathews, D. J. H., Levit, K., Roach, N. & Ratain, M. J., Sep 10 2019, In : Journal of Clinical Oncology. 37, 26, p. 2368-2377 10 p.

Research output: Contribution to journalArticle

Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion

Kaufman, D., Geller, G., Leroy, L., Murphy, J., Scott, J. & Hudson, K., Feb 15 2008, In : American Journal of Medical Genetics, Part C: Seminars in Medical Genetics. 148, 1, p. 31-39 9 p.

Research output: Contribution to journalArticle

Ethical implications of workarounds in critical care

Stutzer, K. & Rushton, C. H., Oct 20 2015, In : AACN advanced critical care. 26, 4, p. 372-375 4 p.

Research output: Contribution to journalArticle

Ethical issues in caring for patients with ebola: Implications for critical care nurses

Rushton, C. H., Feb 2 2015, In : AACN advanced critical care. 26, 1, p. 65-70 6 p.

Research output: Contribution to journalArticle

Ethical issues in HIV prevention research with people who inject drugs

Sugarman, J., Rose, S. M. & Metzger, D., Apr 2014, In : Clinical Trials. 11, 2, p. 239-245 7 p.

Research output: Contribution to journalArticle

Ethical issues in human organoid and gastruloid research

Munsie, M., Hyun, I. & Sugarman, J., Mar 15 2017, In : Development (Cambridge). 144, 6, p. 942-945 4 p.

Research output: Contribution to journalArticle