Academic Centers

Research Output

Article

The role and impact of personal faith and religion among genetic service providers

Geller, G., Micco, E., Silver, R. J., Kolodner, K. E. N. & Bernhardt, B. A., Feb 15 2009, In : American Journal of Medical Genetics, Part C: Seminars in Medical Genetics. 151, 1, p. 31-40 10 p.

Research output: Contribution to journalArticle

The significance and expectations of HIV cure research among people living with HIV in Australia

Power, J., Dowsett, G. W., Westle, A., Tucker, J. D., Hill, S., Sugarman, J., Lewin, S. R., Brown, G. & Lucke, J., 2020, In : PloS one. 15, 3, e0229733.

Research output: Contribution to journalArticle

Open Access

The tarasoff rule: The implications of interstate variation and gaps in professional training

Johnson, R., Persad, G. & Sisti, D., Dec 1 2014, In : Journal of the American Academy of Psychiatry and the Law. 42, 4, p. 469-477 9 p.

Research output: Contribution to journalArticle

The Tyranny of Hope

Geller, G., Jul 1 2019, In : The Hastings Center report. 49, 4, 1 p.

Research output: Contribution to journalArticle

Toward a model informed consent process for BRCA1 testing: A qualitative assessment of women's attitudes

Bernhardt, B. A., Geller, G., Strauss, M., Helzlsouer, K. J., Stefanek, M., Wilcox, P. M. & Holtzman, N. A., Jan 1 1997, In : Journal of Genetic Counseling. 6, 2, p. 207-222 16 p.

Research output: Contribution to journalArticle

Toward an optimal healing environment in pediatric rehabilitation

Geller, G. & Warren, L. R., Oct 22 2004, In : Journal of Alternative and Complementary Medicine. 10, SUPPL. 1, p. S-179-S-192

Research output: Contribution to journalArticle

Towards client-centered counseling: Development and testing of the WHO Decision-Making Tool

Johnson, S. L., Kim, Y. M. & Church, K., Dec 1 2010, In : Patient Education and Counseling. 81, 3, p. 355-361 7 p.

Research output: Contribution to journalArticle

Toward treatment with respect and dignity in the intensive care unit

Sugarman, J., Jan 1 2015, In : Narrative inquiry in bioethics. 5, 1, p. 1A-4A

Research output: Contribution to journalArticle

Trainers’ perception of the learning environment and student competency: A qualitative investigation of midwifery and anesthesia training programs in Ethiopia

Kibwana, S., Haws, R., Kols, A., Ayalew, F., Kim, Y. M., van Roosmalen, J. & Stekelenburg, J., Aug 1 2017, In : Nurse Education Today. 55, p. 5-10 6 p.

Research output: Contribution to journalArticle

Trustworthy Research Institutions: The Challenging Case of Studying theGenetics of Intelligence

Johnston, J., Banerjee, M. P. & Geller, G., Sep 1 2015, In : Hastings Center Report. 45, p. S59-S65

Research output: Contribution to journalArticle

Twenty years since cruzan and the patient self-determination act: Opportunities for improving care at the end of life in critical care settings

Rushton, C. H., Kaylor, B. D. & Christopher, M., Jan 1 2012, In : AACN advanced critical care. 23, 1, p. 99-106 8 p.

Research output: Contribution to journalArticle

Understanding treatment with respect and dignity in the intensive care unit

Aboumatar, H., Forbes, L., Branyon, E., Carrese, J., Geller, G., Beach, M. C. A. & Sugarman, J., Jan 1 2015, In : Narrative inquiry in bioethics. 5, 1, p. 55A-67A

Research output: Contribution to journalArticle

Unintended changes in cognition, mood, and behavior arising from cell-based interventions for neurological conditions: Ethical challenges

Duggan, P. S., Siegel, A. W., Blass, D. M., Bok, H., Coyle, J. T., Faden, R., Finkel, J., Gearhart, J. D., Greely, H. T., Hillis, A., Hoke, A., Johnson, R., Johnston, M., Kahn, J., Kerr, D., King, P., Kurtzberg, J., Liao, S. M., McDonald, J. W., McKhann, G. & 12 others, Nelson, K. B., Rao, M., Regenberg, A., Smith, K., Solter, D., Song, H., Sugarman, J., Traystman, R. J., Vescovi, A., Yanofski, J., Young, W. & Mathews, D. J. H., May 2009, In : American Journal of Bioethics. 9, 5, p. 31-36 6 p.

Research output: Contribution to journalArticle

Uniting to improve end-of-life care

Rushton, C. H., Sabatier, K. & Gaines, J., Jan 2003, In : Nursing Management. 34, 1, p. 30-33 4 p.

Research output: Contribution to journalArticle

Using a quality improvement model to enhance providers' performance in maternal and newborn health care: A post-only intervention and comparison design

Ayalew, F., Eyassu, G., Seyoum, N., van Roosmalen, J., Bazant, E., Kim, Y. M., Tekleberhan, A., Gibson, H., Daniel, E. & Stekelenburg, J., Apr 12 2017, In : BMC pregnancy and childbirth. 17, 1, 115.

Research output: Contribution to journalArticle

Using cognitive interviews to enhance measurement in empirical bioethics: Developing a measure of the preventive misconception in biomedical HIV prevention trials

Sugarman, J., Seils, D. M., Watson-Ormond, J. K. & Weinfurt, K. P., Jan 2 2016, In : AJOB Empirical Bioethics. 7, 1, p. 17-23 7 p.

Research output: Contribution to journalArticle

Using direct clinical observation to assess the quality of cesarean delivery in Afghanistan: An exploratory study

Evans, C. L., Kim, Y. M., Yari, K., Ansari, N. & Tappis, H., May 27 2014, In : BMC pregnancy and childbirth. 14, 1, 176.

Research output: Contribution to journalArticle

Using Empirical Data to Inform the Ethical Evaluation of Placebo Controlled Trials

Sugarman, J., Jan 2004, In : Science and Engineering Ethics. 10, 1, p. 29-35 7 p.

Research output: Contribution to journalArticle

Variability in the costs of institutional review board oversight

Byrne, M. M., Speckman, J., Getz, K. & Sugarman, J., Aug 2006, In : Academic Medicine. 81, 8, p. 708-712 5 p.

Research output: Contribution to journalArticle

Was a decision made? An assessment of patient-clinician discordance in medical oncology encounters

Leppin, A. L., Humeniuk, K. M., Fernandez, C., Montori, V. M., Yost, K., Kumbamu, A., Geller, G. & Tilburt, J. C., Dec 1 2015, In : Health Expectations. 18, 6, p. 3374-3381 8 p.

Research output: Contribution to journalArticle

What keeps you up at night? Genetics professionals' distressing experiences in patient care

Bernhardt, B. A., Silver, R., Rushton, C. H., Micco, E. & Geller, G., May 1 2010, In : Genetics in Medicine. 12, 5, p. 289-297 9 p.

Research output: Contribution to journalArticle

What patients say about medical research

Sugarman, J., Kass, N. E., Goodman, S. N., Perentesis, P., Fernandes, P. & Faden, R. R., 1998, In : IRB Ethics and Human Research. 20, 4, p. 1-7 7 p.

Research output: Contribution to journalArticle

What patients with addiction disorders need from their primary care physicians: A qualitative study

Press, K. R., Zornberg, G. Z., Geller, G., Carrese, J. & Fingerhood, M. I., Apr 19 2016, (Accepted/In press) In : Substance Abuse. p. 1-7 7 p.

Research output: Contribution to journalArticle

Who refuses enrollment in cardiac clinical trials?

Biswas, M. S., Newby, L. K., Bastian, L. A., Peterson, E. D. & Sugarman, J., Sep 20 2007, In : Clinical Trials. 4, 3, p. 258-263 6 p.

Research output: Contribution to journalArticle

Who should go first in trials with scarce agents? The views of potential participants

Pentz, R. D., Flamm, A. L., Sugarman, J., Cohen, M. Z., Xu, Z., Herbst, R. S. & Abbruzzese, J. L., Jul 1 2007, In : IRB Ethics and Human Research. 29, 4, p. 1-6 6 p.

Research output: Contribution to journalArticle

"why are we doing this?": Clinician helplessness in the face of suffering

Back, A. L., Rushton, C. H., Kaszniak, A. W. & Halifax, J. S., Jan 1 2015, In : Journal of palliative medicine. 18, 1, p. 26-30 5 p.

Research output: Contribution to journalArticle

"Why are we doing this?" Creating new narratives to meet futility with integrity

Turner, K., Rushton, C. H. & Kurtz, M., Jun 1 2019, In : AACN advanced critical care. 30, 2, p. 198-203 6 p.

Research output: Contribution to journalArticle

Why ethics guidance needs to be updated for contemporary HIV prevention research

Brown, B. J. & Sugarman, J., May 1 2020, In : Journal of the International AIDS Society. 23, 5, e25500.

Research output: Contribution to journalArticle

Open Access

Willingness to Donate Organs Among People Living With HIV

Nguyen, A. Q., Anjum, S. K., Halpern, S. E., Kumar, K., Van Pilsum Rasmussen, S. E., Doby, B., Shaffer, A. A., Massie, A. B., Tobian, A. A., Segev, D., Sugarman, J. & Durand, C., Sep 1 2018, In : Journal of acquired immune deficiency syndromes (1999). 79, 1, p. e30-e36

Research output: Contribution to journalArticle

Women’s experience of facility-based childbirth care and receipt of an early postnatal check for herself and her newborn in Northwestern Tanzania

Bishanga, D. R., Massenga, J., Mwanamsangu, A. H., Kim, Y. M., Eorge, J., Kapologwe, N. A., Zoungrana, J., Rwegasira, M., Kols, A., Hill, K., Rijken, M. J. & Stekelenburg, J., Feb 1 2019, In : International journal of environmental research and public health. 16, 3, 481.

Research output: Contribution to journalArticle

Open Access

“Am i cut out for this?” Understanding the experience of doubt among first-year medical students

Liu, R., Carrese, J., Colbert-Getz, J., Geller, G. & Shochet, R. B., Jan 1 2015, In : Medical Teacher. 37, 12, p. 1083-1089 7 p.

Research output: Contribution to journalArticle

Book
Chapter

Brain research on morality and cognition

Mathews, D. J. H. & Bok, H., Jan 1 2015, Handbook of Neuroethics. Springer Netherlands, p. 1151-1166 16 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Chronic and Palliative Care Pediatric Populations

Buschman-Gemma, P. R., Farley, J. N. & Rushton, C. H., Mar 28 2013, Child and Adolescent Behavioral Health: A Resource for Advanced Practice Psychiatric and Primary Care Practitioners in Nursing. John Wiley and Sons, p. 426-441 16 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Common threads

Bok, H., Mathews, D. J. H. & Rabins, P. V., 2009, Personal Identity and Fractured Selves: Perspectives from Philosophy, Ethics, and Neuroscience. The Johns Hopkins University Press, p. 187-193 7 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Empirical Approaches to Health Care Ethics

Sugarman, J., Pearlman, R. A. & Taylor, H. A., Jun 18 2007, Principles of Health Care Ethics: Second Edition. John Wiley and Sons, p. 159-165 7 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Ethical Decision Making at the End of Life

Rushton, C. H., Nov 17 2011, Hospice Care for Children. Oxford University Press

Research output: Chapter in Book/Report/Conference proceedingChapter

Getting the ethics right regarding research in the emergency setting: Lessons from the PolyHeme Study

Dicker, N. W. & Sugarman, J., Mar 2 2017, Emergency Research Ethics. Taylor and Francis, Vol. 4. p. 229-246 18 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Human brain research and ethics

Sugarman, J., Jan 1 2015, Handbook of Neuroethics. Springer Netherlands, p. 1103-1106 4 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Kantian ethics, exploitation, and multinational clinical trials

Siegel, A. W., Aug 4 2008, Exploitation and Developing Countries: The Ethics of Clinical Research. Princeton University Press, p. 175-205 31 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Palliative Care

Burns, J. & Rushton, C. H., Dec 1 2011, Pediatric Critical Care. Elsevier Inc., p. 115-121 7 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Policies and practices to enhance multi-sectorial collaborations and commercialization of regenerative medicine

Bubela, T., Mishra, A. & Mathews, D., Oct 1 2014, Regenerative Medicine Ethics: Governing Research and Knowledge Practices. Springer New York, Vol. 9781461490623. p. 67-87 21 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Public preferences about fairness and the ethics of allocating scarce medical interventions

Persad, G., Sep 18 2017, Interdisciplinary Perspectives on Fairness, Equity, and Justice. Springer International Publishing, p. 51-65 15 p.

Research output: Chapter in Book/Report/Conference proceedingChapter